I developed this new symptom...

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Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 1/13/2007 5:11 PM (GMT -7)   
Hi Guys..I hope everyone is doing ok. Well I wanted to talk about this new symptom that I've developed and I'm wondering if anyone else has experienced this:
 
Ok, so as wierd as it sounds I sometimes feel like either my arm or legs go missing. Not a numb feeling, just not there. Like, not a part of my body. Wierdest feeling ever. Like it will feel like all of a sudden I don't have a leg or legs.
 
Is there a name for this symptom? Maybe its just in my head, but I figured since I'm experiencing other symptoms that this has to be a real neurological symptom.
 
I appreciate any feedback!

rhondab
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Date Joined Mar 2006
Total Posts : 2146
   Posted 1/13/2007 6:27 PM (GMT -7)   
Hey Neurogurl

Geez, that sounds horrible! I haven't experienced this before, but maybe some will be along soon to give u any experience they may have had. I hope this doesn't happen too often for u. Have u contacted u'r neuro about it?? May be a good thing to do!
rhonda
Co-Moderator, MS Forum


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 1/13/2007 7:03 PM (GMT -7)   
For how long does this sensation last? It's never happened to me with MS...but people with some forms of seizure disorder have described this. Usually it lasts for just minutes, and then slowly subsides.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 1/13/2007 7:15 PM (GMT -7)   
Hi uppity...it lasts for a very short period. Sometimes I myself can even make the feeling go away. Maybe by shaking my legs or rubbing them. It lasts I would say 10 or 20 seconds. Maybe longer if I don't rub them. But its pretty brief.

Just now I was searching stuff online and I did come across something about seizure disorder and this feeling...but usually it turns into a seizure and I don't have one. Do you think that feeling alone could represent a seizure or it has to be followed by maybe a convulsion or something.

Look at this other thing I found online about MS and this feeling.

http://www.mult-sclerosis.org/mssymptoms.html

They call it Proprioceptive Dysfunction...loss of awareness of location of body parts. Its obviously neurological being that someone with ms or seizures would get this. What do you think Uppity...And the link that I gave you. Have you ever visited that website. Would you consider it a good website to go to about MS?

Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 1/13/2007 7:18 PM (GMT -7)   
By the way....after googling that term Proprioceptive Dysfunction, it seems that people with this have other problems. I've never fallen or had trouble walking. And it only happened so far when I was sitting

rhondab
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Date Joined Mar 2006
Total Posts : 2146
   Posted 1/13/2007 7:57 PM (GMT -7)   
Neurogurl

I haven't felt it as u describe...loss of location of legs, etc....but when my symptoms first began and i was having the worst of them, i'd get numb all over in patches. The way it was is that if i got still...as in laying down or sitting down...my legs (for example) would get numb almost as soon as i came to rest. I could shake it off as u'r saying...or rub them...and get it to come back, but then as soon as i got still again it'd start back up again. I'm not sure how long it'd have lasted for me since i did freak out and 'wake' them up as soon as it happened, but i realized it where maybe u'r not realizing it right away?
rhonda
Co-Moderator, MS Forum


TiaJoy
Regular Member


Date Joined Sep 2006
Total Posts : 59
   Posted 1/14/2007 12:24 AM (GMT -7)   
Sometimes when I'm laying down,I can't feel my legs. I don't know if my legs are straight or crossed untill I look. Thankfully it doesn't usually last too long. i constantly have numb spots on my legs and now my arms are getting numb also. I'm having so many strange things happening lately. Mainly a burning itchy sensation on my legs and constant tight spots. so to sum it up-whats not burning or cramping then its numb. You wouldn't think that all that can be happing at one time.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/14/2007 7:28 AM (GMT -7)   
Neurogurl said...
By the way....after googling that term Proprioceptive Dysfunction, it seems that people with this have other problems. I've never fallen or had trouble walking. And it only happened so far when I was sitting
Yes, this is a long-term dysfunction. I experience it -- I have little awareness of my left side, particularly my left rear -- a challenge when I try to transfer from chair to chair: I have to look to see where I'm "aiming" to be sure the chair is fully under me.
 
You certainly can go to whatever other MS sites you want..and the one you quoted is as good as any. I don't think you'll learn much more than you already know, though -- most of your symptoms are not typical of MS, you don't have many of the more common MS symptoms (trouble walking, balance issues, etc.), only those problemmatic vision problems.
 
Someone suggested you go to the lyme forum -- they provided a link in another of your threads -- because they thought your vision problems might be related.
 
And no, you don't have to have convulsions, or foam at the mouth, or even become unconscious, to have seizures. Seizures..like migraine headaches..come in a lot of different variants, and obviously cause neurological dysfunction.  Think of your brain as an electric box -- if there is a "short" somewhere, even briefly, the lights will flicker. They may not go out..but they'll flicker.  That may be what's happening with you.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 1/14/2007 9:57 AM (GMT -7)   
Thanks everybody...you have definately helped!

booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 1/14/2007 8:23 PM (GMT -7)   
I get this sensation before I get a migraine. I know I'm getting one because my arm does not look or feel as if it is a part of me. I know exactly what you mean. I have not yet been diagnosed with MS but have been seeing a neuro for a few years and going through all the tests.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/15/2007 8:42 AM (GMT -7)   
I think neurogirl had one neuro suggest to her that she undergo testing for migraines. I don't know if she's done that yet, but lots of folks here have encouraged her to do so.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rushelle
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/15/2007 9:17 AM (GMT -7)   
Uppitycats;

I think the migraine route is the right one. I also suffer from migraines and that is when alot of my other symptoms will follow.

Neurogirl;
You really should look into the migraine side of all of this. I couldn't believe it when my Doctor told me all the symptoms that can accompany them. My 13 yr old son also suffers from them ( for the past 5 yrs, poor fellow). They can cause severe numbness, loss of vision, and other things you would never associate(sp) with it. They are MORE than just a headache.......

take care

rushelle
rushelle


rushelle
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/15/2007 9:19 AM (GMT -7)   
forgot something.........

here's an idea.........make a record of what you are doing each day, how much caffeine you had that day, etc. than make sure to write down when you have 'symptoms'

You might be able to find a 'trigger'.

Most migraine have a trigger that sets it off.

hope that helps

rushelle
rushelle


Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 1/15/2007 9:45 AM (GMT -7)   
I definately had some doctors tell me that it was a migraine variant however other doctors say no because by definition a migraine as well as a seizure is episodic. Meaning it cannot last all day long. My eye symptoms are all day everyday and the feeling i mentioned above is once in a great while. I swear I have some sort of vascular issue going on. I'm not sure what test would show that though.

dvmtobe
New Member


Date Joined Nov 2006
Total Posts : 19
   Posted 1/15/2007 10:14 AM (GMT -7)   
Hello Neurogurl
I know that you had questions about optic neuritis (maybe not in this post but somewhere else).  I think someone answered you as to how it felt for them but I thought that I would chime in as well.  I have had diagnosed optic neuritis twice now.  Once when I was in college (9 years ago) and I was just diagnosed this past spring.  The first time I had a lot of double vision in one eye.  I didn't have any pain but things were definately blurry.
This past time it has been pretty severe.  It started with intense stabbing pain behind my eye everytime it would move.  It didn't even help to close my eye because my eye would still move behind the lid.  Then my vision became blurry.  I describe it as "the fog rolled in".  The fog was in splotch right in the center of my viewing area.  The pain persisted with the vision change.  Now it is kind of smoldering.  I have stabbing pain periodically and flashes of light.  The vision gets worse when I take a hot shower, exercise or if it is hot out.  I have trouble moving my eye how I want to (it kind of jerks around).  I don't know if this helps you, but I have been told that my symptoms are pretty classical for optic neuritis. 
I am sorry that you have having so much trouble.  I know the feeling when something is wrong but no one can help you or tell you why.  I have read your symptoms before and they don't sound very similar to what I have experienced but everyone is different.  It sounds to me like you should investigate the cardiovascular issues you have discussed.  Good luck to you :)

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 1/15/2007 10:35 AM (GMT -7)   
Neurogurl said...
I definately had some doctors tell me that it was a migraine variant however other doctors say no because by definition a migraine as well as a seizure is episodic. Meaning it cannot last all day long. My eye symptoms are all day everyday and the feeling i mentioned above is once in a great while. I swear I have some sort of vascular issue going on. I'm not sure what test would show that though.
"By definition a migraine is episodic"??  I'll have to see if I can find a source for that.  VASCULAR issues are not neurological in nature. You need to see a specialist is cardiology -- heart problems, blood pressure problems. You mentioned the "hole in your heart" -- that's vascular, not neurological.  You've said in more than one post that you are convinced it's neurological..but many of your symptoms seem to be vascular -- I'd sure be pursuing that avenue, if I were you.  I think I suggested this before -- go back to the doctor who talked about the "hole in your heart".  The one website that I found suggested that was a congenital disorder -- meaning you've had it from birth. That doesn't mean you might have had problems from birth -- congenital problems often lie dormant, sometimes never causing problems, other times indeed causing problems sometime in life. This may well be that.  Seems like you've exhausted many neurological possibilities - -and with already having that diagnosis, seems worth checking out.  As for the migraine issue -- if nothing else, going through migraine testing would at least definitively rule that out...or perhaps clarify that it is indeed a migraine issue.
 
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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