Again, I'm so sorry that you even have to be here...but I'm glad you found some support.
Please be careful about what you read, particularly what you read on the internet....even here. There is a lot of false information "out there", and a lot of folks who have their own agenda -- and will try to convince you that you have all sorts of things other than MS.
But -- as you've noted --it does sound like you have MS. MS really isn't all that difficult to diagnose if -- as in your case -- there are plenty of signs pointing at it: The o-bands, protein bands that show up in your spinal fluid **if you have a demylinating disease**, and MS is a demylinating disease, and the most common of those; And you have lesions indicative of MS; And several different episodes, separated by time and symptom, that all point to MS. I actually was told I had MS by my ob-gyn, who sent me off to a neuro to confirm it (he based it on his observation of what I've come to learn are "clinical signs"; the neuro went on to do the spinal tap. I was diagnosed with MS long before there were MRI's...) So I'd suggest that, no, it's not all that important to know whether your neuro has had a long history of diagnosing and treating MS. I suspect she does -- again, MS is one of the more common neurological disorders, and most neuros have indeed treated patients with it. As you noted, she likely did not subject you to the evoked potentials because all the other test results were pointing to MS.
You have every right to be anxious. And if you're still not fully convinced, it wouldn't hurt to call the neuro and either talk with her on the phone, or go back in with your husband, and ask her to go over it again: what were the results that pointed to MS; is she convinced it's MS, and why; and maybe hearing it a second time, with your husband hearing it too, will ease some of your doubts.
Some things you might want to ask her: does she have a preference as to which of the meds she'd like you to be on; when should you call her (with every new symptom? with symptoms that are particularly troublesome? ) Should you talk to her or does she have a nurse or nurse-practioner who can be helpful? Does she want follow-up visits -- or is she one of those neuros (like mine) who would be fine with you seeing your regular family physician, who can consult with her if there are questions? Is your family physician willing to be your PRIMARY doctor?
And then come back here if you have more questions, or just want to vent. We'll try to be helpful.
Hey, a little denial is a good thing. It gives us time to process and sort through otherwise overwhelming information, and make sense of it in the end. You're doing fine. I meant to say in an earlier post, that I was diagnosed relatively quickly too -- about 3 months from the time I went in to the doctor to diagnosis (this was before MRI's..) The doctor told me later that he was pretty sure I had MS from the moment I walked into his office -- he saw me walking in and noted my awkward gait -- but of course had to confirm it through testing. So lots of folks are diagnosed pretty quickly.
The internet is a wonderful thing - -we can learn all sorts of things through surfing the net. But it's dangerous, too, as there is a lot of misinformation out there. And folks who are searching frantically for information because their situations are complex, and they've not gotten a diagnosis of something just yet. Those who get answers quickly and early aren't usually as vocal or noticeable..
Anyway...glad to see you're dealing ok with this. Don't hesitate to come back with questions or concerns, or just to share.