Well it took awhile to be dx'd - as I am also a cancer patient (advanced melanoma Stage IIIC). My doctors at MD Anderson (MDA) thought my cancer had spread to my lungs and brian. I had lesions show in both at the same time. The MRI's from MDA kept saying Flairs, white matter... the report would always say MS - until the lesions showed in the brain. As recommended by my doctors there I went to 4 Nuero and 1 MS specialist at Mayo that barely gave a glance at my films or reports and all said I did not have MS. What made my cancer doctors believe the cancer had spread to my brain was the fact the lesions were round. My curent (new) lesions are rectangle/oblong. On my most recent MRI they called in somebody special and it was confirmed it is MS. Of course to help validate this is the fact the right side of my face has been numb since Novemeber. I also have on the MRI report two areas they have titled "black holes". Anybody else have "black holes"?
Those black holes showed up in my early 30's -so we are guessing at this time, that is when this disease began to show itself. I have had 3 spinal taps and have high levels of protein and I have bands (whatever they are).
Now I have to find an MS doctor. The trick will be treatment. Most MS treatment feeds my type of cancer. My cancer doctors are talking about Interferon-beta. Makes me more than a little nervous as I took Interferon-alpha for a year for my cancer. Was a horrible time due to many side effects. My cancer doctor said it is VITAL he speak with the MS doctor about any treatment other than Interferon-beta.
So, here I am. New member of this on-line family. I am looking forward to being an active member of this community and becoming friends with as many of you as possible. So...anybody do Interferon-beta? How often? How much? Side effects? and does anybody else have "black holes".
*Hugs* to all