Tysabri & follow up

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Veteran Member

Date Joined Dec 2005
Total Posts : 896
   Posted 2/14/2007 8:49 PM (GMT -6)   
Hi All,
Just a quick note (I'm fighting the Avonex crud tonight)  My friend here who was in a wheelchair just a year ago from ms is now on Tysabri (she was on Avonex and novantrone and got good results) and had her 3 mos. neuro check and mri...her neuro is amazed, he says her mri is clear, if he hadn't known her all this time he would say she doesn't have ms!   Her walking, etc..is so much better.  She has progrssive relapsing, very rare.  On Tysabri you have to have an mri and neuro appt. every 3 months.
My hubby wants me to go on the Tysabri but we'll see what my neuro says in march.  She doesn't want to change anything right now (she won't even change me to the powder avonex).
Also, I had my anal manometry today and it wasn't painful, I think it was normal and I will probably see the gi doc next wed. I will see a new urologist on Monday.
Take care...big hugs to all of you who aren't feeling well or are emotionally hurting. :-)

Michelle ><>
Co-Moderator MS forum
Happiness is not a destination but a day-to-day journey..

Post Edited (shellypoo) : 2/14/2007 8:14:32 PM (GMT-7)

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 2/14/2007 10:20 PM (GMT -6)   
Hi Michelle,
     I'm glad that test wasn't painful for you.  Are there anymore tests pending or is that the last of the lot?  Good luck with your doctor appointments, I do hope you get some answers!!  I am a bit confused as to why your neuro refuses to budge on the Avonex thing, why would the powder make a difference to her if it could possibly help you??? (sorry just care about you and feel a bit frustrated for you as well)  Take care my dear friend, and keep us updated.
Co-moderator for Multiple Sclerosis
Allow Healing Well to continue to help others, clink link for details

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 2/15/2007 12:44 AM (GMT -6)   
Hey Michelle!!

Good to see u!! Wow!...sounds like ur friend has had great success with Tysabri!! What wonderful results!! I hope u do get to try that in March...seems it could be a great alternative for u! I'd certainly love to see u doing better...but bet u'd love to see it much more than me. ;) I'm like Kimber tho, why not make any changes with all the probs u've had??

I'm sooo thankful the test went well for u and wasn't painful!! I know u were dreading that and it's wonderful to actually NOT have bad or painful effects for a change! I really hope it was normal and all is well...and that u do get to see the gi doc next week! Please let us know how u'r appts go when u'r able and how u are. It's so great to see u here again!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Regular Member

Date Joined Apr 2006
Total Posts : 366
   Posted 2/15/2007 12:51 AM (GMT -6)   

That would be wonderful if you could try the Tysabri! Even more wonderful if you worked for you like it did your friend! I hope you get some relief very soon, you deserve it!

Glad the test went good. I hope you get the results soon.

Take it easy and take care of yourself!

When everything's coming your way, you're in the wrong lane.

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