This is also my first post on this site!
I have also not been diagnosed with MS - So far I have had an MRI scan on my head and spine, which showed up two lesions on my brain and one on my spine. My Lumber Puncture showed up all clear and am now waiting for the results of a recent evoked potential test.
My first two doctors said that they thought it was highly likely it was MS but my Nurologist has said he did not think it was. He wants me to wait and see what happens a few years down the line because some people only have one relapse and it can never happen again????? Is this true?
It all started in June last year after finishing 4 exams I went to the hairdressers and started to have pins & needles in my left foot, on leaving the salon the pins & needles had extended up my left leg - I thought nothing of it and expected it to eventually go - It didn't - It eventually moved up the whole of my left hand side and I also experienced a tooth ache/shooting pain sort of sensation down my left arm and leg. I was also feeling awfully tired and weak. I had these symptoms for approx 2 weeks so I went to my local GP who told me to go home and come back if it got worse as he had no idea what it was - I went back after a few days to another GP who did loads of blood tests etc all showing up negative apart from my Thyroid gland (for which I now have to take Thyrokine) - Eventually my whole left hand side was numb and freezing cold and the pins & needles had also started in my right leg, I was struggling to walk and had to go on my hands and knees going up and down stairs - So I went to the casualty at my local hospital were more tests were done and eventually I was sent home with a promise of an MRI scan within 4 wks. This is what started all the testing......
The whole of the symptoms lasted between 6 & 7 wks. And eventually I just stayed at home and rested and they started to go away. I still get shotting pain sensations down my left arm and leg but its nothing compared to what it was!!!
I feel like people think I am making it all up - Why would I?
I am only 25 years old and can't believe this is happening to me as I am so young!
I would love to hear from people in similar situations to me. And also from people who know of ways to relieve the symptoms through diet or herbal supplements etc.... The Nurologist has given me some sort of Anti-depressent/muscle relaxant sort of tablets for the shooting pains but I have not as yet taken them - because the side effects are very similar to my MS symptoms.
Welcome to the forum! Sometimes new posts get passed over when introduced in another thread so I started a new thread for you so more people will see your post
I'm sorry you are having problems so young. There are certain criteria for a diagnosis of MS, and your neuro doesn't feel that you meet those right now, and wants to wait and see what happens. It is true that in some cases people only experience one relapse, but if you do experience another relapse and/or have another MRI in the future showing more lesions that might be enough for a diagnosis.
I've yet to see any diet or supplements that help with MS symptoms. Some supplements actually boost the immune system which can be harmful for MS patients, so please be careful. There are many medications though to help with symptoms, and you may or may not experience those side effects that you seem to be fearing will happen. Everyone is different in response to meds, you might find one that works for symptoms that you can tolerate well. Best of luck and please keep us updated as to how you are doing, I'm sure others will be along soon to welcome you.