Well, isn't that interesting!

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Regular Member

Date Joined Jul 2006
Total Posts : 156
   Posted 2/22/2007 11:21 AM (GMT -6)   
I requested my records from the MS specialist's office that I've been seeing. The girl at the front desk copied off the entire chart and gave it to me.

I was reading through it last night, and on my referral form sent from my PCP to this doctor in October, the diagnosis reads "multiple sclerosis". Not "rule out multiple sclerosis" or "possible multiple sclerosis", but "multiple sclerosis".
I think that's rather odd, especially since my PCP claimed not to have a clue as to what is wrong with me. Evidentially he had more of a clue than what he was letting on. Now I'm wondering if this means I have actually been diagnosed with MS or if it was just a formality on the referral. Another one of those things that make you go, "Hmmmm".

Lisa ~
Living in Limboland!
Negative MRIs + Negative LP + Positive symptoms = A lot of confusion + A ton of frustration!

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 2/22/2007 11:45 AM (GMT -6)   
Hey Lisa

WOW...that's mind blowing! I'm wondering if maybe the note on dx saying 'multiple sclerosis' is intended as a preliminary dx for further confirmation rather than a firm dx? Seems more likely that than a firm dx given he referred u to a neuro. Have u contacted the doc's office to question this?? Maybe they can shed some light on this. I'd certainly be like u...very confused! Please let us know what u find on this!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 2/22/2007 12:20 PM (GMT -6)   
I think a call to the doctor is in order. Sure sounds to me like you're no longer in limbo, though.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Jun 2006
Total Posts : 329
   Posted 2/22/2007 12:27 PM (GMT -6)   
Wow Lisa. What a find! Please call your PCP and let us all know what he/she says.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Regular Member

Date Joined Feb 2007
Total Posts : 161
   Posted 2/22/2007 4:18 PM (GMT -6)   

Hi Lisa,


WOW!  It makes me so mad when doctors play god and think they can pick and chose what to tell you!  In New Zealand it's highly illegal for Dr's to keep information from you....is that the case where you are?


But besides all that .... how are you feeling about it?  Are you feeling relieved to be out of "limboland"???  I know it sounds dumb but I would love to read that on my file....I certainly don't want MS, but I don't want to have "imaginitis" either!


Let us know what the doctor says about it!



Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 2/22/2007 5:17 PM (GMT -6)   
Hi Lisa,
   Yes I'd be going hmmmm too!  It might be that MS is what he thinks it might be and wanted the neuro to check into that possibility.  Regardless I'd be making some phone calls and inquiring!  Please let us know what you find out.
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Jenny R.
Regular Member

Date Joined Sep 2006
Total Posts : 162
   Posted 2/22/2007 9:45 PM (GMT -6)   
Shashi, when I went to see my PCP last spring, after complaining to him of my facial tingling for 5 years, he finally sent me to have a brain MRI done, on the slip that I had to take with me to the hospital the day of the MRI, it had under diagnosis, MS.  The technician asked if I had MS and I told him that I don't know why he has this like this, but No.  This was the first test that I ever had done for my current problems.  I then told him that my gram had MS and also that migraines are on the maternal side of my family.  Well, I think I would still call and ask.  Good luck!!!  :-)
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