Do I need a new neurologist?

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Regular Member

Date Joined Jul 2006
Total Posts : 156
   Posted 2/23/2007 8:09 AM (GMT -7)   
I've been seeing an MS specialist in Knoxville, TN, who is highly recommended by several of her patients (some of them from this site) and by the National MS Society. I've seen her twice, the first time for my initial consultation with her back in October, then again the first week of January for an EMG. I connected really well with her, and appreciated the time she took during both of my appointments to talk with me and do a thorough exam.

However, there have been a couple of things that have me concerned. The first is that, according to her office staff, she lost my chart and had to recreate it. I figured something was up when each time I requested copies of my office visit notes, the records person would tell me that they weren't ready yet (after four months?) At my last appointment, I finally got a copy after being told that the doctor had to recreate them, and immediately noticed inconsistencies with what actually happened during my exam (notably that I was able to spell the word WAGON backward and forward with no difficulty. The word was actually SPRING, and I left out the letter R. There is also no mention of the present Babinski in my left foot or the absent ankle reflexes and hyperactive knee reflexes which she found on my exam.)

My other concern is that she evidentially is so popular that she's booked up for seven months in advance. I cannot get a follow-up appointment with her until September! I figure by then, I'll either be better or dead! I do have an appointment to see her nurse practitioner next month, but shouldn't I be seeing the doctor at this point, especially since we're still trying to identify what is going on and find a diagnosis, and since my symptoms seem to be progressing at an alarming rate?

I'd like to continue with this doctor since I've built somewhat of a rapport with her, but what good is it to have an excellent doctor that you can't get in to see? She's the third neurologist I've been to since this all started last May, and I"m at a loss as to how to find a new one who can help me.

What would you do in this situation.

Lisa ~
Living in Limboland!
Negative MRIs + Negative LP + Positive symptoms = A lot of confusion + A ton of frustration!

Post Edited (Shashi) : 2/23/2007 11:42:25 AM (GMT-7)

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 2/23/2007 9:54 AM (GMT -7)   

I would go see the nurse practioner .. and tell her of your concerns.  That you are not clear what, if any, diagnosis you have (because your records were lost? re-created? some confusion between doctors?).  SHE might not have lost your chart -- the office staff might have, and are covering their butt.  It would be pretty unusual for a doctor to lose the chart -- but she passes it back to the staff who are supposed to file it away.  I suspect they've been scrambling to see where they mis-filed it!

If you're looking for a doctor who will give you an instant diagnosis -- that's not likely, until there is some clarity in your test results: enough tests coming back "positive for MS", for a doctor to declare that.  And possibly that has happened with you, but that message hasn't been clearly transmitted to you!

Of course you can see another doctor..but this is doctor number 3, they've all had relatively the same answer: "We don't know what's wrong; we need to watch and wait and see what develops", and seeing another doctor may just add to the confusion.

Nurse practioners are pretty highly skilled.  And usually have more time to meet with a patient, and answer questions and concerns.  I wouldn't have any hesitancy myself to be seen by one, rather than a doctor, for follow-up visits.


...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Motown John
Regular Member

Date Joined Jun 2005
Total Posts : 475
   Posted 2/26/2007 5:57 PM (GMT -7)   
Monday p.m.
Miss Lisa:  Why do you think you cannot get an appt. for a few months?
Probably because she is so good, she is bookek up!!!
I will admit that there is no reason to have lost your info, but...
A good neuro to MS patients is PRICELESS. 
I say keep her.  John

New Member

Date Joined Feb 2007
Total Posts : 5
   Posted 2/26/2007 8:41 PM (GMT -7)   
this is to [DO I NEED A NEUROLOGIST]       everyone who has multiple sclerosis needs a good specialist. i have had ms since 1994 and would be lost without the help of mine.. i just want to wish u the best of luck.. and my prayers are with u...  i'm new at this site and i don't know how i go about posting on a forum..... i've been in the chat room a few times and i enjoy talking to people about my disease... i hope to be able to post so i can meet more people..... good luck with ur neurologist... bye for now.. tongue

Post Edited By Moderator (rhondab) : 2/27/2007 8:42:56 AM (GMT-7)

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 2/27/2007 8:55 AM (GMT -7)   
Hey Littledaisy!

It's so good to see u've found us! I hope u'll feel comfortable chatting and asking questions or posting helpful info. I"m sorry u've had to deal with MS for such a long time, but, talking to others about it or other probs can be so helpful.

It's good to see u found the chat room here at HealingWell, but u mention not knowing how to go about posting. Well on the main MS board page...where u found this topic and clicked on it...there's a 'button' called "New Topic" situated on the left hand side above the list of topics. Click on that and u'll be taken to a page where u can post u'r own subject questions/comments. Be sure to scroll down to the bottom and hit the 'submit' button and then u'r done! If u need any help or have any questions, please feel free to email me or any of the moderators and we'll be glad to help. Also, i edited u'r post to Shashi listing u'r personal email address. For u'r security, that should be listed in u'r profile and not in the body of a post. Let me know if u'd like some help and i'll show u how to get there and set that up.

One last thing...we have scheduled live chats on Monday's at 6:00pm (cst) each week. It'd be great to see u there!! I hope u'll have a chance to drop in with us and let us get to know u as well as giving u a chance to 'pick our brains' for real time answers. ;) Take good care and it's so good to see u here!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

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