Thanks Rhonda and Uppity. I appreciate, as always, your words of wisdom.
It's just been very frustrating to go from healthy and active to barely being able to walk at times, all within 9 months, especially since I'm still a newlywed and this has greatly affected my marriage. And my husband still doesn't understand how I can be so sick with so many tests being normal.
I think what scares me the most is that my mom had some unidentified neurological or muscular disorder, and I seem to be progressing down the same path she did. Many of the symptoms I have now are symptoms that I remember her talking about
. The last ten years of her life, she couldn't walk, and the last two years, she suffered from dementia. I don't want to end up like that, and I keep thinking that the sooner they find out what the heck is going on, the sooner they can hopefully treat me and prevent it from getting worse. And getting worse I am. Every time I have a flare or exacerbation or whatever, I'm left with more and more limitations.
But I don't have to tell you guys this. You all know very well how it feels. Which is why I know that, of all of the people in my life, you're the ones who I can talk to who understand the most. Thanks for being there for me, even when I do get "whiney"!