Posted 3/6/2007 8:12 PM (GMT -6)
Hey Bonnie

Wow...big step forward! Seems as tho this appt was well worth it and i'm glad u went! I know u'r in shock now...i'm sure it's quite scary to actually hear the words. Good that u'r husband was with u and able to help u remember all he said. Please do let us know how u'r doing and how the next appt goes. That Copaxone study may be a great thing in helping on the cost of u'r meds! Take good care!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Posted 3/6/2007 8:34 PM (GMT -6)
Hi Bonnie,
 
    Sounds like you're gonna get some answers!  Take good care of yourself, no more fake flares :-) Give yourself some time to get all you learned today to sink in, and we'll here for you if you need us.  Please let us know when you find out more. 
 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details
Posted 3/7/2007 11:04 PM (GMT -6)
Hello to all...........


I am no longer in Limbo Land..... Today I got the official word I have MS. I start my trial screening on Monday. Very Bitter/Sweet news. Did know how i would react.....

I guess im just glad to have found out, and can now move on to the next step. they say If all goes well I should be on Copaxone by the end of this month or first week in April. So im not going anywhere. I will need you guys more than ever now. TY for keeping me sane through my limbo land.

Hugs,
Bonnie
Life Can Be A Challenge.... 
 Expect The Un-expected....
Live Everyday As If It Were Your Last.

Posted 3/7/2007 11:10 PM (GMT -6)
Hey Bonnie

Oh my goodness...i'm so sorry, but in a sad way very glad u'r out of limbo and can move forward with treatment. We will most definitely be here for u friend. Take good care and take time to let this sink in. It's quite a hunk of news to accept and u'll need to give u'rself time for that. Take such good care and let us know how it goes getting on the Copaxone.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Posted 3/7/2007 11:14 PM (GMT -6)

Oh Bonnie,

I am so sorry. Bitter - sweet is right.  Hang in there.  I love reading your posts.  You have an interesting life.  Keep posting - I really like the descriptions of your job.  By the by I know a firefighter with MS and he is also on copaxone.  He is doing well - he still works with enthusiasm.  Good luck! 


Gretchen
 
diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking

Posted 3/8/2007 8:25 AM (GMT -6)
Hi Bonnie -

Sorry to hear about the news, but glad someone else is out of limboland. Definately keep us posted about how your job and this disease works together. I, like Gretchen, love to hear about your job too, it sounds much more exciting than mine!

I'm hearing so much good from people on the copaxone, hopefully it will help you as well. I do have a question though, why does it take so long to get on the copaxone? Here's a newbie question... Can't you just go to the pharmacy and pick it up like normal scripts? I know a home nurse has to come over and show you stuff, but 3 weeks seems awfully long. If anyone can answer those questions, that would be great. I'm just curious.

Take care and definately keep in touch.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Posted 3/8/2007 11:16 AM (GMT -6)
Denda,

I'm not sure how it would work for a regular prescript, but I and trying a clinical trial of Copaxone. Before you can start and meds on a study or trial you need to be medically screened with baselines. This is so when you start the drugs they can tell what type of effects it has in your body. I basically have to do it their way. I don't mind. Thank you all for being there. Denda and Gretchen, you both made me laugh when you said you enjoyed reading my discription of the training i am going throu. This is because the whole time I typed it, i kept saying to myself, this will be so boring for them to read. I hope someone is able to answer your questions better than I can.

Hugs
Bonnie
Life Can Be A Challenge.... 
 Expect The Un-expected....
Live Everyday As If It Were Your Last.

Posted 3/8/2007 11:51 AM (GMT -6)
Hi Bonnie,

I'm so sorry u got that bad news but as everyone has said at least ur out of limbo. I too enjoy hearing about ur job. Please know that we are here for u anytime u need us.

Bye!!!

Sheila :-)
Posted 3/8/2007 1:23 PM (GMT -6)
I'm so sorry. It's always a shock to hear that kind of news, even when it might be expected. Good luck with the trials. I would be interested to hear how that goes.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Posted 3/8/2007 1:37 PM (GMT -6)
Thanks for the explaination Bonnie!

I didn't know if this was common practice when someone is dx'd or what. If you are on the trial study, then I definately understand. Thanks again.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Posted 3/8/2007 6:53 PM (GMT -6)
Wow....out of Limboland......I hope that the Copaxone works well for you!!!

Thinking of you.

KAS!
Posted 3/8/2007 8:17 PM (GMT -6)
Hi Bonnie,
 
    Please know we are all here for you.  I am sorry about the official dx but at least now you know for sure.  Good luck with the trial and I hope Copaxone works good for you.  By the way, your job is far from boring, I enjoy reading about what you do also :-)
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

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