multiple sclerosis

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New Member

Date Joined Feb 2007
Total Posts : 5
   Posted 3/5/2007 5:09 PM (GMT -6)   
:-)  I have had MS since 1994... I've done very well for years, but lately i am having more tremor and seizure attacks than ever before...  I would like to know what other people with MS take for these tremors....... help!!!!!!! sad

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 3/5/2007 5:36 PM (GMT -6)   
Sorry, I have neither tremors nor seizures, but by responding we'll keep this toward the top of the list. I hope someone can be helpful!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Jun 2006
Total Posts : 329
   Posted 3/5/2007 7:09 PM (GMT -6)   

Hi LittleDaisy -

My neuro had me on Topamax for minor seizures.  I stopped it because it made my symptoms worse and have noticed that my tremors are more frequent now.  I am not officially dx'd yet, but maybe ask your dr about Topamax.  It does have some cognitive side affects, as well as numbness and tingling in the feet and hands, some people have alot of trouble with it, it took some getting used to, but if your other symptoms are not bad, Topamax may help your tremors and seizures.  Hope this helps!  Keep us updated.

I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 3/7/2007 10:51 AM (GMT -6)   
Hey LittleDaisy

How are u doing?? Are the seizures and tremors still going on?? I hope all is better and u've gotten some help with this. Please let us know how u'r doing.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Regular Member

Date Joined Jul 2005
Total Posts : 196
   Posted 3/7/2007 10:27 PM (GMT -6)   

Little Daisy

I saw a neuro Mon after 3 yrs of not seeing one.  My PCP sent me back when she saw the tremors, along with alot of other problems.  I have had 4 bouts, I'm not yet up on the correct words, over the last 1 1/2 yrs.  They last a month or two.  Then slowly go away.  

I was diagnosed Monday with demylinating disease of cns based on my old mri's, spect from last year, and current problems.  But my Dr said mine is from lyme disease.  Most people don't know what the cause is.  They are setting up MRI but due to insurance will probably take a couple weeks.  Some Dr consider demylinating disease of cns and MS the same, but said that mine is a little different in that we know what is causing it.  Just don't know how to stop it.

He did put me on a medication for the tremors.  He said there were several choices.  But we had to find one filtered by the kidneys because my liver is acting up.  Baclofen...I have been on it since Monday and today I feel like the tremors might be responding to the med.  They are not gone, nor my headache or other problems.  But the tremors seem to have lessened in the middle of the day.  He said they might help my headache.  It did seen to lesson some during the middle of the day also.

Hope this helps and you find some relief.  I'm new to this thing.  When they wanted to say MS several yrs ago, I didn't want to listen.  But I do fit the profile.  I have probably 90% of the symptoms.    


Post Edited (MarshasKoi) : 3/7/2007 8:29:55 PM (GMT-7)

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