What to do? Please help!

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jazzman23
New Member


Date Joined Mar 2007
Total Posts : 2
   Posted 3/9/2007 4:20 PM (GMT -7)   
Hi,
   I am 27 years old and I have had years of symptoms that have not been explained. I have had every blood test, MRI, cat-scan, evoke potential test, sleep tests...etc. you can have. I needed my medical records for Military reasons and the other day I got to see all the little memos and letters that I have never seen before. You are supossed to believe everything the Dr. tells you I guess. Anyway, I will list all the symptoms here and you tell me what you think (note that when this all started I was in top physical shape (played varsity soccer and football, ran track) and never drank or did a single drug):
14 yrs. tremor in my little finger on my left had. Lasted weeks and I never saw a doctor about it.
16 yrs: numbness/tingling above my left thumb and then moved to my forearm (no numbness in hand-numbness remains in arm to this day)
17 yrs: Almost exactly one year later I recall a shooting and burning pain in my right arm and that eventually became numb in exactly the same place as my left forearm. Not too long after this patches of numbsess appeared on both tricepts (all numbness still remains).
19 yrs: Lifting weights and a lightning/stabbing pain went through my left shoulder blade. That became numb (numbness still there) and then not too long after my right shoulder blade went numb for quite a while but that has gone away. I wrote it off as a pinched nerve.
21 yrs: Before I head to basic I was diagnosed as red-green color blind. I am not sure if this was always the case but it was the first time someone ever told me this. (this diagnosis was confirmed at a later date). During basic I had shingles (autoimmune disease found normally in older people and not extremely common in young healthy people). After basic I started suffering from extreme day time fatigue. I was constatly tired for no reason no matter how much sleep I got (months of this). I had a sleep study and everything turned out normal. I also started to have blurred vision and my eye seemed to move back and forth very quickly every now and then, but that didn't last long. 
22 yrs: twitching in left thumb lasting weeks. Diagnosed with carpal tunnel.
23 yrs: I started to get depressed for no reason and anxiety (panic attacks). I could not concentrate in school even though I always have been doing very well in school (also straight A's in high school). I was diagnosed with ADHD and prescribed Adderall (even though I never needed this before to do well). That helped a lot and I could function. I stopped seeing nurologist cause it was wasting my time and money and getting me no answers. The doctor's said they couldn't figure out the cause to the symptoms but couldn't rule out MS.
Now: I am about to finish my Master's degree. As the years have progressed I cannot go without adderall and function. Because it is controlled so carefully a few times when I have had to move and start over with a new Doctor I would run out and then be too tired to go get more medicine. I went the first semester of grad school without it and I did ok. But I know without a doubt I could have done much better if I could control my tiredness.  I also take antidepressants. Without them I feel like crap and don't want to move, and just want to sleep all day. Also, I have had dizzy spells while running even though that has never happened to me before.
 
Because I kept moving due to school and didn't stay with the same doctor I don't think that my medical history was shared with everyone. Looking at my records now it is odd to read that all the test that where done for carpal tunnel actually rulled it out as a cause for the numbness in my arms, but the doctor still said that's what it was and gave me a wrist splint. He also noted but didn't tell me that if it didn't get better than to consider it an emergancy (I never knew that). Also, I have read that people sometimes get other autoimmune diseases like shingles in groups and that those diseases can trigger MS. I also have had this weird patch of skin on my arm for about 9 months. I though of it as nothing but looking closely at it it looks a lot like Lichens Planus (a not so common autoimmune disease of the skin). I need to see a dermotologist for that now. I have no STDs to explain any symptoms and I have been tested for everything. I have no pinched nerves in my back or neck according to the MRI's yet numbness, tingling moves around in patches over my entire body and weird buzzing feelings. Also, I heard that optic neritis can cause red-green color distortion. I feel crazy and for a long time I have just gotten used to the numbess and weird sensations. But recently, I confronted this and realized that this isn't normal. If it's not MS than it has to be something else. I am tired of not knowing what has been going on for the last 10+ years. If anyone thinks this could be something else or can relate to what is going on with me please tell me your story. The doctors can't help but maybe you can.
    
 

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 3/9/2007 7:17 PM (GMT -7)   
Friday p.m.
 
Very good evening, Jazzman:
 
Wow.  I can sense your frustration as I am exuasted just reading your tale.
 
I too, was in great physical shape 20 years ago when my first MS symtoms appeared.
 
I'd suggest checking with your local/state MS Society for a referrance to a MS specialist neuro. 
 
"Regular" neuros treat a full series of things...find a specialist.  And if it is MS, start on some therapy right away.
 
Very best of luck.  John

MSBLESSED
Regular Member


Date Joined Feb 2007
Total Posts : 70
   Posted 3/10/2007 6:20 AM (GMT -7)   
Wow! That's a lot of information but I wouldn't let it stop me from diggin' deeper to get a diagnosis. One that makes sense to you. You know your body better than anyone, and you KNOW when something isn't right. I'm not sur what type of insurance you have, but don't stop asking questions. There are some awesome people on this site that are willing to share their personal stories and helpful information. Keep us posted on progress. There are those of us who really care. Trust me.
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