Hi Eleanor -
I am going to see an MS specialist next month for a 2nd opinion by the advice of my neuro. My neuro has run the following tests on me as it stands, MRI - abnormal, EEG - slightly abnormal, LP - normal, blood work - normal.
My tremors described are shaking for no apparent reason, the most bothersome are the ones that are like caffeine jitters that I get most of the time now in both hands and arms. My head always feels like it's shaking, but on the outside it isn't, my lower jaw will start trembling like when someone is cold, but mine happens at any time. My legs will start at a slight tremor and then go more into a violent shaking for about a minute and then it's gone. However when I do get cold, I will start to shiver and even when I am warmed up, I still 'shiver' up to a 1/2 hour after being warm, I didn't relate this to MS though, just my body trying to get warm again, that I would think is normal.
As everyone here has said lesions on an MRI is not the DX getter, it's a part of the diagnosis process, but I have to have something else clinical to back it up... possibly if the MRI in April shows active lesions or new lesions, with the symptoms that I have? I don't know. This may sound horrible but I think MS is much easier to dx when someone has had the horrible experience of losing the use of their arm or leg for several days and then if an MRI shows lesions or the LP is positive it's a tad easier, but for those of us that luckily have not had that type experience, and we just have 'symptoms and sensory problems' it becomes a lot harder to dx. Even though I have the rt sided numbness on the arm and leg, I still can use them and have not been hospitalized for anything. I walk like I am drunk about 50% of the time and have other balance/dizzy issues as well, but my neuro still feels that she alone can not dx on what we have so far. Which is OK, since now I'm going to see a MS specialist and hopefully get a yay or nay. As far as I know, everything else has been ruled out, so it's just a waiting game.
Hang in there we're all here to help one another. This forum has been my godsend as well since I've started testing.
I not only use all the brains that I have, but all that I can borrow.
Author: Woodrow Wilson (1856-1924), 28th U.S. President