Hi Akorz -
I'm not dx'd as of yet, but I can tell you that a friend of mine has had MS for over 30 years. She has never taken any medication at all. I can't remember if it was against her dr's wishes or not. She is still driving, although on shopping trips or anything that she is going to be on her feet for a few minutes she does need a wheelchair. She also needs help walking since her gait has gotten so extreme and she is very off balance. But she is one of the most wonderful people I have ever spoken to, her outlook on MS and life is also wonderful. She has residual problems, but has not had an exacerbation in a long time up until last summer, for several days she couldn't get out of bed and couldn't have the lights on, I guess it was really bad. And now that she had to have knee surgery, she's having even more issues. She has never had an MRI and doesn't think that it would matter if she did. She still feels really good. She just takes the normal vitamins, multivitamin and a few supplements (I don't know exactly what those supplements are, but I do know one is echinecia (sp?)). I asked her about if she was concerned about boosting her immune system and she said no, her dr never told her anything about it and she still feels fine. Her Dr is quite elderly and I think she said is very close to retiring and 'old school', so she didn't refer me to him.
Now... if she had been on meds?? Who knows maybe she would be better off now, eventhough she looks and acts fine, she is having alot of difficulty getting around and I don't think she regrets anything in the past that she has done or not done in direct response to treating the MS. It is Remitting/Relapsing though, I would assume that has something to do with it, but who knows?
So in my journey of finding out what I want to do IF I find out it is MS, I've spoken to people on both spectrums, gotten a ton of great advice here and will take the MS specialists advice in consideration also on if I were his daughter/wife ect.. what would you suggest, knowing that you prescribed this medicine for them and watch the progression OR sometimes the horrible side effects of the CRABS. I know I have cognitive damage already, some days are OK, most are not. My family has already gotten into the practice of finishing my sentences since it will take me a while to say what I mean. Just over the couple of years I started with the noticable issues, I've lost alot of confidence in my job, just to talk to people. I would much rather email and that was not like me. I am/was a people person and loved to interact with the people I work with as well as friends, I'm shying away from that right now.
I do not like taking drugs either, I never have, but I know what I've been doing w/o drugs isn't helping me right now. I've searched the Internet for healthful diets and I already eat healthy, live a healthy lifestyle, I also got hooked into some 'miracle juice' from one of those MLM companies and still no help. I hope you do find this somewhat useful and not a rant, because if there is anything I think any of us would like more than not having MS, would be to treat it naturally, I just have not found that yet.
I not only use all the brains that I have, but all that I can borrow.
Author: Woodrow Wilson (1856-1924), 28th U.S. President