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akorz
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 3/16/2007 7:19 PM (GMT -7)   
Does any one here treat their M.S. with natural remedies?

tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 3/16/2007 7:31 PM (GMT -7)   
ya know I was wondering the same thing. I was thinking about trying the marcrobiotic diet. I saw that gov that is running for pres, Mitt something or other and his wife who has MS was on Larry King last night and she said she only uses homeopathic stuff to treat her ms and I was thinking is that a good message to send out to MS patients? My neuro would freak if I said I was gonna quit all my meds and just use natural treatments. I would like to try to do them together, but I think the meds are important too. I don't know though, I am no expert by any means.... I wonder what natural treatments there are? I work out every day and I think that helps....hmmmmm....

akorz
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 3/16/2007 7:54 PM (GMT -7)   
thanks I will check that out marcrobiotic diet you say, I will look that up. My mom has been using drugs for over thirty years and hasn't improved at all it's time to do something different. All the drugs have side effects that are worse than her symptoms and some of the drugs have been pulled from the market, because they are so dangerous. Einstein defines insanity as doing the same thing over and over and expecting different results.

Kimber
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Date Joined Jun 2005
Total Posts : 1852
   Posted 3/16/2007 8:09 PM (GMT -7)   
Hi Akorz,
 
   Sorry about your mom.  Are you talking of treating MS symptoms or progression?  I'm not aware of anything natural that works for progression, although theres certainly a lot them out there that claim to but no proof that they do.  Diet and exercise can sometimes be a big help with how you feel, but they wont help the progression part of it.  The only natural thing we've found to help symptom wise was gingko biloba for memory issues.  May not work for everyone but my husband has show improvement in short memory and word recall when taking it.  Good luck and I hope you find something to help your mom.
 
Kimber



 
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Post Edited (Kimber) : 3/16/2007 9:16:16 PM (GMT-6)


akorz
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Date Joined Mar 2007
Total Posts : 6
   Posted 3/16/2007 8:50 PM (GMT -7)   
hey kimber,
thanks for your reply my mom is taking ginko already and I'm talking about treating the symptoms. She has found she has food allergies does any one else with M.S. have food allergies too? and what kind?

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 3/17/2007 7:26 AM (GMT -7)   

If in fact you are talking about alleviating symptoms with natural remedies, then the title of this thread is misleading. There is no "cure" for MS, natural or otherwise.  The drug your mother is on (I'm assuming it's either Avonex, Betaseron, Copaxone, or Rebif) was never advertised as a "cure" for MS, or even a "cure" for MS symptoms, but instead was designed to reduce the number and intensity of exacerbations. Each exacerbation can lead to significant disability, so anything one can do to slow that down will lead to a better quality of life.

Your mother could only have been on one of the drugs for the last 15 years, as they weren't available before then.  Who can say how well off -- or significantly impaired -- she would be now, having had MS for 30 years -- if she hadn't gone on one of the drugs?  I've had MS for 24 years now, myself, and am absolutely convinced that the Betaseron I've been injecting for the last 14 years or so has significantly slowed the progression of my disease.  I have all the symptoms I've always had...but no more, and not worse. That's a GOOD thing.

If your mother does start ingesting natural remedies, even vitamins, or if she dramatically changes her diet, she needs to tell her doctor, as some of those "remedies" can have adverse effects when mixed with any prescribed medicines she might be on. And you certainly don't want to encourage her to do anything that will boost her immune system -- our immune systems are already in "overdrive", and those things can cause all sorts of problems.

You're asking about food allergies.  Has she actually been tested for food allergies, or is she complaining about some foods "not agreeing" with her (more appropriately called a "food sensitivity).  There is an increase in food allergies all over society today -- celiac disease (a wheat gluten allergy), allergies to peanut butter, lactose intolerance (inability to digest milk), are some of the more common ones. Any of these can make a person quite ill, and sometimes with various bowel and bladder problems that are common with MS can cause increased problems there.  But she should be properly tested to be sure she knows what it is, and how to treat it, because some of the allergies are rather simple to treat, others would take a huge amount of effort to change diet, and if she's just assuming there is a "food allergy" and then goes on one of these fad diets, could worsen her situation.

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


akorz
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 3/17/2007 6:07 PM (GMT -7)   
Maybe I should be more specific, I was asking if any one has actually cured their M.S. with vitamins or some sort of natural remedy, or has with had better results with them than meds? that's the question I am asking.

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/17/2007 6:56 PM (GMT -7)   
akorz said...
Maybe I should be more specific, I was asking if any one has actually cured their M.S. with vitamins or some sort of natural remedy, or has with had better results with them than meds? that's the question I am asking.
There is no "cure" for MS, natural or otherwise.  Some of the diets -- like Atkins, the macrobiotic that someone mentioned, exercise, can help some folks feel better, perhaps.  Losing weight is always a good thing, eating more fruits and vegetables is a good thing, avoiding foods that might make you feel ill is a good thing (like, I avoid milk as I am lactose intolerant)...
 
but avoiding tested medicines and substituting them for "natural remedies" is NOT a good thing, generally.  Some folks have continued on the prescribed meds and also changed their diet, which is another possibility to consider.
 
Now you can surf the Net and find other forums where folks who are deep into natural "cures" and "remedies" will tell you that we (who choose to use the medicines prescribed for MS, despite their side effects) are nuts, and that their "cures" will take care of your mother.  Or not.  MS is extremely unpredictable.  Some folks can go along for years without any serious exacerbations, or disability, and do "natural cures" and assume that the "cure" is treating their MS.  They could even die of old age still believing that, because their course of MS is sufficiently mild and non-disabling.  Or they could wake up tomorrow morning suffering a severe and disabling exacerbation, even on a "natural cure"...or for that matter, on one of the meds prescribed for MS.  It's a crap shoot.  But I'd rather stack the odds in my favor, and stay on a med that has shown to be effective in slowing the course of the disease.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 3/17/2007 7:45 PM (GMT -7)   
uppitycats.... I have to totally agree with you! I was so aggravated the other evening watcihng this woman on larry King saying she treats her MS "naturally" and is doing fabulously. I thought that that was an irresponsible thing for a public figure to do. It made me feel like taking my meds (which are hard enough to take with all the side effects I experience) was a silly thing to do. Thank goodness I have an AWESOME neuro who is constantly helping me keep perspective. I know that if I cant take the avonex side effects I can switch meds but that I need to be on something. I have had a year with out any relapses which makes the side effects worth it!

Kimber
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Date Joined Jun 2005
Total Posts : 1852
   Posted 3/17/2007 9:10 PM (GMT -7)   
Hi akorz,
 
    There is no cure for MS.  It really all comes down to how it's effecting the individual.  Some of the side effects of the meds to treat symptoms can be nasty for some people.  If she's not doing well on them you can certainly try alternatives.  They might work, they might not though.  Be sure whatever you decide to do or she decides you let her doctor know so they can continue to monitor her.  Progression is what we, my husband and me, are more concerned about.  The symptoms can be horrible themselves but if you can slow progression the possibilty of those symptoms getting worse or development of new ones has a much better outcome longterm. 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

akorz
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 3/19/2007 10:06 PM (GMT -7)   
hey Darci,

please tell me more about glyconutrients, thank you for your post.

akorz
New Member


Date Joined Mar 2007
Total Posts : 6
   Posted 3/19/2007 10:13 PM (GMT -7)   
If the woman or larry king or whatever is having good results doing things naturally why are you guys knocking it? The funny thing about doing things naturally and taking responsability for our own health is that it often times works better than what doctors decide is best for us. the average age of a doctor is under 50, thats not the result that most people are looking for is it? People who are successful in anything have a method to their success first define what you want, second find someone who has it, third do what they did. I'm looking for someone who has had successful results going the natural way, if you haven't than it's a waste of both of our time for you to respond, thanks any way.

Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 3/20/2007 7:38 AM (GMT -7)   

Hi Akorz -

I'm not dx'd as of yet, but I can tell you that a friend of mine has had MS for over 30 years.  She has never taken any medication at all.  I can't remember if it was against her dr's wishes or not.  She is still driving, although on shopping trips or anything that she is going to be on her feet for a few minutes she does need a wheelchair.  She also needs help walking since her gait has gotten so extreme and she is very off balance.  But she is one of the most wonderful people I have ever spoken to, her outlook on MS and life is also wonderful.  She has residual problems, but has not had an exacerbation in a long time up until last summer, for several days she couldn't get out of bed and couldn't have the lights on, I guess it was really bad.  And now that she had to have knee surgery, she's having even more issues.  She has never had an MRI and doesn't think that it would matter if she did.  She still feels really good.  She just takes the normal vitamins, multivitamin and a few supplements (I don't know exactly what those supplements are, but I do know one is echinecia (sp?)).  I asked her about if she was concerned about boosting her immune system and she said no, her dr never told her anything about it and she still feels fine.  Her Dr is quite elderly and I think she said is very close to retiring and 'old school', so she didn't refer me to him.

Now... if she had been on meds??  Who knows maybe she would be better off now, eventhough she looks and acts fine, she is having alot of difficulty getting around and I don't think she regrets anything in the past that she has done or not done in direct response to treating the MS.  It is Remitting/Relapsing though, I would assume that has something to do with it, but who knows?

So in my journey of finding out what I want to do IF I find out it is MS, I've spoken to people on both spectrums, gotten a ton of great advice here and will take the MS specialists advice in consideration also on if I were his daughter/wife ect.. what would you suggest, knowing that you prescribed this medicine for them and watch the progression OR sometimes the horrible side effects of the CRABS.  I know I have cognitive damage already, some days are OK, most are not.  My family has already gotten into the practice of finishing my sentences since it will take me a while to say what I mean. Just over the couple of years I started with the noticable issues, I've lost alot of confidence in my job, just to talk to people.  I would much rather email and that was not like me.  I am/was a people person and loved to interact with the people I work with as well as friends, I'm shying away from that right now.

I do not like taking drugs either, I never have, but I know what I've been doing w/o drugs isn't helping me right now.  I've searched the Internet for healthful diets and I already eat healthy, live a healthy lifestyle, I also got hooked into some 'miracle juice' from one of those MLM companies and still no help.  I hope you do find this somewhat useful and not a rant, because if there is anything I think any of us would like more than not having MS, would be to treat it naturally, I just have not found that yet.

 

 

 


I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/20/2007 8:38 AM (GMT -7)   
Hey Belynda

Fantastic post! Thanks for sharing that with us all! Both sides of the picture...that's what we need and can then take away what is helpful to each of us. I'm still looking for that good diet to help with not only my gi issues, but for mine and my familiy's overall health...thanks for the push u gave here! :)
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


Denda
Regular Member


Date Joined Jun 2006
Total Posts : 329
   Posted 3/20/2007 12:29 PM (GMT -7)   
Hi Darci -

I see you keep talking about the glyconutrients. I have taken these and for myself did not work, it started with an A and I lost a lot of $$. Maybe they will work for someone else and maybe if I had enough $$ to contribute to the cause it might have worked for me as well, but upon alot of research on the product that I was taking, I was already getting enough of the specific sugars through the healthy eating that I was already doing. Maybe for someone who does not eat well to begin with, these glyconutrients work, but they didn't in my case.
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 3/22/2007 4:14 PM (GMT -7)   
I think I was misunderstood. I thought the point was everyone just talking and saying what we think, sorry if I insulted. I did not "knock" the woman who used natural methods I just questioned if it was right to promote it. Ya see she made me feel bad for taking my meds. I have tried so hard to not give up on meds, I get seriously ill every thursday for 24 hours b/c of my interferon. I have fevers and cannot walk and take care of my daughter, so when someone says that my meds are not useful or good for me it is hard for me to swallow. I try hard to keep a positive outlook and keep taking my meds b/c my doc has told me that that would keep me walking. I'm sorry if you thought I was knocking natural methods, I was not, I was actually curious about what people do. I would use natural methods in conjunction with my meds, anything that will make me able to be "me" as long as I can.

tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 3/23/2007 1:58 PM (GMT -7)   
Darci- That is very cool. Can you explain these glyconutrients to me? Where do you get them and do you mix them with something? What are they? I am very interested in doing both natural and medical treatments.

littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 3/23/2007 10:47 PM (GMT -7)   
Very interesting topic here. Personally, I do both. I am on Copaxone and I also follow a vitamin and diet regimen that I found in a book called Prescription for Natural Healing. I researched the information in this book and found that several sources supported the claims made about how these particular vitamin and diet recommendations may help.

I am all about living as natural as possible, I don't even take a Tylenol if I can avoid it and I use only organic cosmetics and things like that. But this MS thing scared me enough to open up my mind to other approaches. The research available on the MS drugs was too positive to ignore and I chose to embrace technology as well as nature. The way I see it, eating an extremely healthy diet and ensuring I get plenty of vitamins sure can't hurt at all and I think the two approaches compliment each other. I have been doing both for two months now and I feel pretty darn good.

I wish you much luck in your research.
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