I have an appt with my Neuro on the 26th to discuss new symptoms that have appeared. Needless to say, I am terrified! I have been "ill" for over two years now and so far no diagnosis. This illness definitely waxes and wanes with periods of remission and exacerbation. It started with horrible fatigue and malaise, then migraines, then disequalibrium then severe neck pain, and so many other symptoms to list
Within the last month... my neck has become so weak that I cannot sit or drive without resting it on a pillow behind my head. Also, I have noticed that I am having major weakness in both of my legs. It's so hard to stand or even walk for that matter, especially up stairs! I have been to every "ologist" there is and so far they have NOT been able to diagnose anything. I've seen an Endocrinologist, Cardiologist, Infectious Disease, Rheumotologist, and my Neurologist. They have all suspected Lupus, MS, Lyme and as a last resort Fibromyalgia. I have a weakly positive ANA (titer 1:80), but ALL other labs they have run are normal. I did have a brain MRI about
2 weeks after this all started in '04 and it was normal, also a Spine CT which was normal. I am only 28 years old, and it's so frustrating to be so ill and the Dr's have no answers
Especially when I have NEVER had any health problems before. Every morning I wake up and wonder "will this be a good day or a bad day"? My life has been severely altered and effected and I just wish I knew WHY. What this illness is. Does this sound like MS? Is this how it starts? Looking for advice and hope.
~DX'd Basilar/Complicated Migraines 10/05
Is it Lupus, MS, Lyme, or Fibro??? Still working on a diagnosis.
Treatment: Midrin, Amitriptyline (20mg), Motrin 800mg, Magnesium 400mg, Malic Acid 600mg, B6, B12