ms/copaxone and seizures HELP

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irishheat13
Regular Member


Date Joined Mar 2007
Total Posts : 25
   Posted 3/23/2007 2:33 PM (GMT -7)   
I am hoping someone out there can help me make a desision on an ms treatment. I was diagnosed november of 05 and am just now deciding to get on a treatment. The problem is even more complicated because i also have ms with seizures. I would think that's enough but Í have had bipolar disorder for 20 years and have been on Seroquil for that and Dilantin for the seizures. If there is anyone still there after reading my seemingly endless sad story my dilema is this. I am trying to decide between Copaxone and methotrexate i am leaning toward metho cause im not crazy about giving myself shots everyday. I've been told Copaxone would be safer but i would like to hear that from people who know. ANY HELP WOULD BE GREATLY APPRECIATED!!!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3547
   Posted 3/23/2007 3:59 PM (GMT -7)   

Hey Irishheat,

Get on a treatment!!!  Everything I have read says to get on a treatment as soon as possible and stay on it.  I am on copaxone so that is what I will share with you.  I have no info on the metho.  I have been on copaxone and it is a BREEZE!!!  Really!!  The only sort of scary time was the first shot I gave myself.  The first one can be a bit frightening but after that it is a piece of cake.  Seriously, I thought it would take a couple of weeks to get use to but it is so easy that after the first shot, I felt like an expert.  You will be amazed at how brave you feel and how good you feel for taking charge and doing something to attack this disease.  I do my shots every evening and I think nothing of it.  The copaxone is great because according to my Dr. it has very, very few drug interactions.  It is safe to take with just about every other drug out there.  There should be no problem with your other medications.  Also, aside from mild site pain, there is really no significant side effects.  So, there you are.  Good luck, and keep posting!!

Love and prayers,


Gretchen
 
diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking


tkelly3287
Regular Member


Date Joined Jan 2007
Total Posts : 142
   Posted 3/23/2007 7:32 PM (GMT -7)   
Irishheat-first of all love the name I grew up in Ireland! Secondly, I don't know if avonex interferon is a choice for you but that is what i am on and I can tell you my experience with that..... The other thing I would have to tell you is don't choose your treatment b/c it does or does not have shots involved. Seriously you get over the shot thing quick and it does give you this weird sort of pride. Choose what suits you the best and if that is shots you have a whole group of people here to help you walk through it.....good luck!

BGD2Me
Regular Member


Date Joined Apr 2006
Total Posts : 366
   Posted 3/23/2007 8:49 PM (GMT -7)   
I have a friend who has MS with a seizure disorder. Her and her doc chose Avonex. I think because it is once per week. She also still takes Tegretol to control the seizures. She has been doing very well with both of them. And she hasn't had a seizure in years.

I can't give you any personal info because I am not dx as of yet.

I wish you the best of luck!

Lysha
When everything's coming your way, you're in the wrong lane.


littlechina
Regular Member


Date Joined Jan 2007
Total Posts : 97
   Posted 3/23/2007 10:26 PM (GMT -7)   
Irish,

I am on Copaxone, and just like everyone else has said the shots are really nothing. And this is coming from the queen of the fear of needles. If I can do the shots, anyone can. Tkelly is right, it does give you a kind of pride!

Obviously, your situation is a bit more complicated with the other medications you are on so I would definitely consult with your doctor about possible interactions. But I agree that you should not choose your treatment based on shot or no shot, but on what will work best with your situation.

Best of luck!

irishheat13
Regular Member


Date Joined Mar 2007
Total Posts : 25
   Posted 3/24/2007 4:24 AM (GMT -7)   
Thank you very much to everyone who has taken the time to give me their opinions. I have just joined this site and i can already tell there are some great people here. Thanks again and god bless.
                      IRISHHEAT

MSBLESSED
Regular Member


Date Joined Feb 2007
Total Posts : 70
   Posted 3/24/2007 12:38 PM (GMT -7)   
Welcome Irishheat! You are right. There are some awesome, knowledgeable and caring people on this site. I've been on Copaxone since Jan 2007 and was diagnosed in Nov 2006, so I started treatment right away. I, like many people who have responded back to you am on Copaxone. It's been 3 months and aside from injection site reactions, I LOVE IT! I feel better and no side effects. Some of the other people I've read about experience some flu like symptoms with their treatments. You need to get as much information on all of the drugs as possible before you make a decision. PLEASE make a decision soon though. The sooner the better. Littlechina and I both have an extreme (and I do mean extreme) fear of needles, and have become "Needles Masters!" :-) Know that people are here and are praying for you. I'm on of them.

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 3/24/2007 7:00 PM (GMT -7)   
Hi Irishheat,
 
   Welcome to the forum.  Your situation certainly is a complicated one, but I commend you for seeking out treatment for your MS.  As you can see we have quite a few people on Copaxone, including my husband.  Yes, the everyday shots are not very appealing, but in time they don't seem as bad or scary as they do at first.  I'm not sure if we have anyone here on Methotrexate, but I have heard it can be helpful for some people.  Just be sure you are well informed of any risks involved for you whichever you decide you choose.  Best of luck and please let us know what you decide!
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
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