WHAT ABOUT SIDE EFFECTS AND LONG TERM EFFICAY OF AVONEX. ANYONE THERE HVNG AVONEX LONGTERM

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manish
New Member


Date Joined Mar 2007
Total Posts : 2
   Posted 3/26/2007 4:43 AM (GMT -7)   
I AM A MS SUFFERER FROM INDIA :-)
 

I am 37 Yrs old, married & have 3 children and by the grace of God involved in my work upto now. I'm still working, walking and able to lead an 'almost' normal life but I'm restricting hectic schedules or stress.  At this point of time it feels that I should be looking seriously to find alternative cure because the doctors of western medicine have their hands for and nothing more to offer.

 

I was first diagonised in 1997 and after that every 2 years I have had relapses which has affected the motor symptoms and lower limbs and after taking the IV steroids 6 times (once every 2 years) upto now I have been able to recover almost fully.  Unfortunately after 2004 this time in May 2006 I have had another attack / relapse but this time after taking this steroids the recovery has not been so much ,I could say about 50 to 60% & still now I have balance problems, problems and walking and standing for long and small numbeness areas on the inner sole beneath the toe   It feels that there is a small band at the end.

 

On reading and browsing the net it appears to me that if the disease is of a relapse and remitting type it will change it course after 9 to 10 years & enter into the Progressive stage.  I do not know that now after almost nine years what is the future and I am sitting on the brink.

 

Last May 2006 had another symptom when similar IV was given. This time my recovery was only 80%, and I have still some symptoms:

 

My present problems since MAY 2006

Fatigue & Weakness in legs & balance problem while walking
Stiffness in legs, feet would feel stiff and could not move if walked over 1 KM, only could walk by literally pulling my feet.
Involuntary Jerks in legs
Difficulty in standing for long

 

Side effects off taking Avonex

Now my Doctor advised to start AVONEX Betaferon 1A. I took the 1st shot last week Monday at 9 PM but 2 hrs later had the side effects:

 

Fever 104 , Severe shaking, trembling in limbs/body, chill, tiredness, nausea and dizziness. This lasted overnight but the fever & tiredness continued till the next day . I have some questions:

 

scool   Questions

 

 

I don’t know whether above side effects is common for everybody taking avonex. 

 

Will there be similar symptoms would have been every time I would take this medicine AVONEX.

 

Does anybody have any idea about the long-term results of taking this medicine

 

Whether Avonex does any help in anyway, if taken for long time.

 

Does anyone have any experience with anything that helps or CURE  in this disease

 

Please reply

 

(Mod Note: I edited your post to exclude your personal email address. Please store that info in your profile.)

 

Post Edited By Moderator (rhondab) : 3/27/2007 9:07:00 AM (GMT-6)


uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 3/26/2007 5:47 AM (GMT -7)   

I'm on Betaseron, not Avonex, but they are both interferons.  I've been on Betaseron for nearly 14 years, without any side effects  =--

other than those you describe -- the aching, fever, chills, after a shot. (But of course with Betaseron I inject every other day, so experience that every other day).

My experience with Beta has shown that the side effects do diminish over time, but you may well experience them to some degree with each shot, even years later.

I've had MS for 25 years -- so many years before these interferons even existed.  I was (and still am) significantly disabled from the MS --

***but since starting the Betaseron have not had any new signficant exacerbation****.  A very good thing.

Yes, MS can progress into something called "secondary-progressive" MS, over time.  I'm now labeled that.  All it means practically is that I have a larger label attached to my medical records..I've not experienced any particular changes, and I'm still on Betaseron.

I don't know if the Betaseron is available in India, but I know Avonex is.  As for "cures" -- there is no cure, but I know Eastern medicine has all sorts of herbal and other remedies you'll be encouraged to try.  Good luck.

 

 


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/27/2007 8:13 AM (GMT -7)   
Hey Manish!

Welcome to the board! I"m sorry u'r experiencing so much in the way of symptoms and lesser recovery. MS is so different for everyone that's it's hard to say that u'll certainly experience significant decline after 9-10 yrs. U'r best possible chance, as we know it now, to fight this disease is to use the disease modifying drugs...Betaseron...and maintain as much activity as u'r able to do. Of course eat well and take good care of u'rself. That's just good advise for anyone, but particularly for those with any illness.

I edited u'r post to exclude u'r personal email address. For u'r protection we encourage u to store that information in u'r profile. Any member can see it's available and can email u if u'd like. If u need any assistance at all, please email me or any of the other mods and we'll be happy to help u set it up. Again, welcome to the board!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


sonny66
New Member


Date Joined Nov 2012
Total Posts : 10
   Posted 11/16/2012 12:24 PM (GMT -7)   
November 15, 2012
Hi
My name is Don. I have MS. I see that you use or think of using Avonex. I’ve had nothing but problems with it short and long term. I’m gone to starting a class action suit. Would you be interested? Don dsc4441@hotmail.com
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