I too have MS. Was diagnosed in 1987, by 2 very distinguished MS specialists at a teaching hospital in Philly.
I decided not to post here because I don't ever mean to cause anyone to be uncomfortable with what I've learned regarding MS and my treatment.
but I thought I'd answer cnjgal because of her question. Here's my story:
I am now treating the cause of my MS with antibiotics, and am slowly beginning to feel better. One of my "symptoms" is head pressure and brain fog. I have always had MRI's -- brain, cervical, and thoracic with and without gladolium...I have lesions in both my brain and cervical spine. My initial symptom was severe nystagmus, I've had 2 bouts of ON, and I suffer off and on with Trigeminal Neuralgia. I have neck pain, floaters, L'Hermittes continuously, I lost coordination in my left hand, have a numb left foot and instep, very sore heels,tinnitus....but am considered benign! Really, all things came back to normal except the continuous L'Hermittes and my numb and tingly foot.
Yes, today I'm treating my MS with antibiotics and I could say I have Lyme Disease. IMO, multiple scaring or MS is a symptom, treating the cause of my MS is called Lyme Disease.
So do you have MS or Lyme? hmmm both?
Testing for Lyme is very flawed; and just like MS, it's a clinical diagnosis! I really recommend getting on a course of antibiotics for about 6 weeks; if you have a reaction to antibiotics....you harbor the bacteria. Testing is flawed because most of us test negative, due to our antibodies being so clumped together we don't recognize the bacteria. Our immune systems are really a sleep.
So, listen to your body and like so many others that have a MS diagnosis and are now treating with antibiotics; you too will to be on the road to recovery.
If I may njgal,,,I too experience and still experience a heightening of numbness etc when I get overheated when I exercise. Reason is the borrelia (the bugs) love it cold! and when we get hot they begin to die and it causes inflammation. I wonder if you've been taking your temp, if so, do you find it's under normal range? Again, a lot of us with MS do average 97.0. The bugs are winning, they keep us cool.
Is it possible that years ago you wern't treated long enough to eradicate the bacteria? Yes. This is a very insidious bacteria...
I really wish all here on this board health, we share a common disease. If I can influence just one person to read about lyme disease, that would make me smile.
BTW, as soon as I get my next set of MRI's and my lesions either are gone or almost gone, I do intend to re-visit my neurologist and share with him my success and treatment which lead to me beating this horrific disease! Educating our neurologists---- it's vital!
Best to all who read this, and if anyone has any questions, I'd be happy to do my best to answer them.