Symtoms....Is This Normal?

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bloooskies
New Member


Date Joined Jan 2007
Total Posts : 6
   Posted 4/8/2007 9:11 AM (GMT -7)   
Hi Everyone,
 
I am fairly new to this site.  I was diagnosed with relapsing/remitting MS last year.  I posted once in January, but mostly just read the posts and comments.  Today I am posting about symptoms, because I am uncertain as to what to expect with MS.  When I was diagnosed last year, I was numb down my neck and arm, a patch on my hand, and 1/2 way up my leg.  This was the 1st time I had a serious attack.  Today (5 months later)....I have almost all the feeling back....but it comes and goes.  For a week, the symptoms will be gone, then they will show up again as tingling in the spots I was numb (irritating...but nothing like going through the attack).  So I go through a roller-coaster of emotions.  Symptoms gone, I'm positive.  Symptoms back, I am depressed. 
 
Is it normal to have the symptoms come and go?
 
Thanks for your replies.
 
Blooo
 

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 4/8/2007 9:32 AM (GMT -7)   
Hi Blooo,
 
    Its nice to see you posting again!  With RRMS, its normal for symptoms to appear during a flare then go away.  But, sometimes you'll get symptoms that are residual, meaning they can stick around between flares.  Numbness is pretty common, and it sounds like this might be a residual symptom for you since it's nothing like what you experience during a flare.  Might be worth mentioning to your doctor though at your next visit, so they can document things. 
 
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 4/8/2007 12:53 PM (GMT -7)   
Unfortunately what you're experiencing sounds pretty typical. It doesn't mean you're having a new flare...just means that your body is reminding you that you have a chronic, relapsing-remitting disease, and it isn't going away. "Remission" doesn't mean a complete absence of symptoms...just a diminishing of them. Sounds like that is what has happened..they've diminished, but intensify a bit, from time to time.

Are you on any of the MS meds? (Betaseron, Avonex, Copaxone, Rebif...)
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 4/8/2007 2:00 PM (GMT -7)   
Hey Blooskies!

Good to see u again! Im not dx'd, but can tell u that i've dealt with the exact same type of coming and going of symptoms for over a year now. It's irritating and a bit bothersome at times, but that's usually the worst of it. I agree with Kimber, i'd mention it to the doc at u'r next appt just to let them know. Hang in there! I"m sorry this is happening, but thank goodness it doesn't seem to be a full flare!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


photogirl1358
Regular Member


Date Joined Apr 2006
Total Posts : 299
   Posted 4/8/2007 11:48 PM (GMT -7)   
Hi Blooo,
 
I can very much relate.  When I'm overtired, things get number, more tingly etc.  When I've gotten enough rest it improves.  I've learned to pretty much ignore it, and just take the cue that I am overdoing it.  I used to really freak out about it, but I guess after a year these things are gonna stick around and I know it could alway be worse.  yeah
 
 
Take care,
Shar
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron


bloooskies
New Member


Date Joined Jan 2007
Total Posts : 6
   Posted 4/9/2007 7:50 PM (GMT -7)   
Thank you very much for the replies. I appreciate hearing other's experiences so I know what to expect. The symptoms do seem to appear when I am overtired or overstressed. I am suppose to be on Copaxone, but I have not made the decision yet. Instead I have taken the low saturated fat approach with plenty of supplements. I have another MRI coming up in June and if the number of lesions increase or increase in size, I will definitely start the Copaxone. Has anyone's symptoms decreased as a result of the medications?

Thank you for sharing.

Blooos

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 4/10/2007 5:46 AM (GMT -7)   
bloooskies said...
Thank you very much for the replies. I appreciate hearing other's experiences so I know what to expect. The symptoms do seem to appear when I am overtired or overstressed. I am suppose to be on Copaxone, but I have not made the decision yet. Instead I have taken the low saturated fat approach with plenty of supplements. I have another MRI coming up in June and if the number of lesions increase or increase in size, I will definitely start the Copaxone. Has anyone's symptoms decreased as a result of the medications?

Thank you for sharing.

Blooos
None of the meds promise to "decrease symptoms". All they promise to do is slow the course of the disease, offer an overall reduction of exacerbations (which lead to the possibility, at least, of increased disability).
 
But many folks find that their specific symptoms seem to lessen, or diminish in intensity while on one of the medications.  Perhaps it has to do with the immune system not producing more lesions, or maybe it's a psychological benefit -- they're taking some control over their disease by doing what they can (and what has scientifically be proven) to control their disease.
 
While diet, exercise and some supplements -- under a doctor's supervison, as SOME supplements are actually HARMFUL, especially those that increase immune system activity -- might be helpful, there is nothing to suggest that they'll do anything to slow the course of the disease...just make you feel better, maybe lower your blood pressure, maybe reduce your weight, all good things...but nothing to actually help your MS.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

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