I know that the numbers of people with MS who suffer from spasticity are pretty high. When I do a google search on it, it seems like most of the links point towards an MS site of some sort.
My own problem with this started sometime last year, before I started seeing my Neurologist.... It started in my outer left thigh, somewhat near the knee. Intense muscle spasm- tightening. Doesn't matter if I'm sitting, sleeping, exercising.. it just comes and goes of its own free will. Nothing relieves it. Tried heating pads, "Icy/Hot", and the last time I was at the Neuro's office, she gave me Zanaflex. That actually made it worse, and my spasms kept me awake most of the night. Since then, I have felt them in my left knee, sometimes in my left calf, in my right ankle, right wrist, and so on.. not nearly as severe, but it is worrisome to me that whatever this is (that is causing this problem) is spreading.
My Neuro told me that based on the fact my MRI showed no lesions, she isn't willing to diagnose me with MS. Most of my symptoms do fit, however. Of course they also fit many other issues.. (including Lyme, and I'm in the process of getting tests done with an LLMD out of state to address that possibility. However, thus far, I can't get anybody with Lyme to tell me this is a "Lyme" issue, or that the antibiotics to treat it are getting rid of it).
Can any of you with this issue tell me about your own troubles with spasticity? And what helped for you? And if this in any way led the doctor closer to a diagnosis of MS (instead of something else they might have been leaning towards previously?).
I hear this can be a serious problem if not dealt with.. but if antibiotics for Lyme (if I have Lyme- either alone, or with another health issue) don't get rid of it, then I need to have it addressed before it turns into something worse than it already is. The Topamax I'm currently on for pain is not working very well anymore, and it never worked for this muscle problem. :(
(undiagnosed) chronic pain, for nearly 10 yrs and counting..