I went to see my neurologist on Monday. I thought it was going to be a follow up from the sleep study. The only thing he mentioned about the sleep study is that it didn't show anything other than I was fatigued, uh yeah!
He was asking how I was doing and I told him about my vibrations in my body when I am waking up or going to sleep. I told him about my numb feet, itchiness, and the burning. He did the reflex test on me. He made several attempts on my left side but he didn't seem to be successful. I did the pin prick test which I couldn't really feel it in my left foot but every where else was fine. He had me walk the hall. I made it about 10 feet from him when he told me to come back. He asked me if my feet felt funny. I don't know, they always feel funny anymore. I'm kinda of use to how they feel by now. Well, he told me I was walking funny.
The whole time I was in there with him I had this horrible stutter. It doesn't happen a lot but occasionally I just stumble all over my words now. It was so embarrassing! I have always been proud of my enunciation and how well versed I am, not any more. He said that he hadn't noticed my stumbling on words and stutter since the very first time he saw me.
He is ordering a new MRI and he "thinks" he can dx me after that.
On the sheet that he gave me to hand to the secretary he had marked the boxes that said, "Ataxia", "Dysarthria" and "Paraethesia". On the back it said to order an MRI.
I am hopeful that this chapter of my life is almost done. I am so ready to start the next chapter!
Thank you to all of you for all the advice, friendship, concern, and empathy! I have appreciated every single word.
Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.
Started my journey 1/06
When everything's coming your way, you're in the wrong lane.