I am so sorry to hear that you are having such a hard time right now. When we were chatting on Monday I had no idea you were so sick. That’s got to be really rough, and especially while on the Copaxone. How are you doing on the roids?
I just wanted to post to wish you well, (I can’t really offer any advice as I’ve only on Copaxone for a little over 4 months, and now of course I’ve discovered that my medical records are so screwy that I don’t even know if I am even officially diagnosed at this point). However, I think I was told that it takes about 6 months for the med to start “working” and it will then only reduce, not eliminate exacerbations….but, I am not certain about this or about the particulars of your situation, so hopefully someone else with more experience with this can confirm or correct.
I really hope that you start feeling better soon!
I think Sunny is right -- I've heard that Copaxone takes about a year before doctors can begin to decide whether it's "working" or not.
And then there is this: None of the drugs, none of the interferons or Copaxone, has promised to stop ALL exacerbations...only reduce the number and intensity of those that do occur. This early in your doing the medication, it may just be that you had this flare. And won't have others. Or that you had ONLY this flare, and might have had more had you not been on the drug.
I was on Betaseron for 2 years before having another flare....but since prior to starting Beta I'd had 2-3 a year, it seemed miraculous to me that I had only that one...and none since, 12 or so years later.
The bad news is that you've had a flare. The good news is that there are meds available now to treat flares, and maybe slow the course of the MS, and indeed if the doctor thinks that Copaxone isn't right for you, there are other possibilities. I hope you feel better soon!
Maybe you should e-mail me. You seem really interested in my case heeheehee. It reallly isn't that remarkable. It started with vertigo and balance issues. I had that foggy head some complain about. I thought I had a sinus or ear infection. Went to the doctor and got anitibiotics which of course didn't help. I thought it was stress related as I am a teacher and it was the end of the year and really busy. I woke up the last day of school and felt really awful but it was the last day of school and so I went. I made it about 3 hours and went down hill so fast that I could not walk without a wall to support me. Went to the hopital and was admitted. Spent four days there where they told me that I had had stroke. (guessing from a lesion found on an MRI) They did lots of stroke and heart type tests and sent me home to learn to walk again. I got a bit better in the next 2 -3 weeks. Then one morning the whole problem was back again. Back to the hosp. thinking another stroke or brain hemmorage. More MRIs and that is when they found the 2nd lesion on my brain which formed during that 3 weeks. They then knew it was never a stroke and went from there. This is really much too long. Sorry everyone, are you all asleep????? Then it was tests for lyme, brain cancer, MS, aids, meningitis and anything else they could think of. After more tests they found the spinal lesion and I went to UCLA MS specialists for a second opinion. MS confirmed there. So there you are. Really, if you have more quesitons e-mail me. I never tire of talking about myself. hehehehehehe.
I am feeling a bit better everyone. Thanks again for all the support. It has been much appreciated.
love and prayers,
Post Edited (Gretchen1) : 4/20/2007 11:08:15 PM (GMT-6)