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Veteran Member

Date Joined Dec 2005
Total Posts : 896
   Posted 4/20/2007 12:48 PM (GMT -6)   
Well looks like the colon is going to be removed.  My gi doc says that is what needs to take place.  I have an appt. with a general surgeon on the 30th.  I am scared to death and this is not something I ever thought I'd have to go thru. 
My colon just does not function normally and wherever that lesion is causing it...I wish it would shrivel up and die!!
I'll try to keep you all posted.  Thanks for your care.
Michelle ><>
Co-Moderator MS forum

Ever stop to think, and forget to start again???

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 4/20/2007 1:48 PM (GMT -6)   

Oh Michelle,

I am so so sorry.  I am just sick about this.  Please e-mail me!!!!!!!!  I would like to offer as much support and love as I can.  I just think the world of you. I have learned so much and been so inspired by your posts.  Please know that you are in my thoughts and prayers everyday.  Take good, good, care.

Love and prayers,


diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking

Regular Member

Date Joined Apr 2006
Total Posts : 299
   Posted 4/20/2007 1:49 PM (GMT -6)   
Michelle, I'm sorry to hear this.  I would be scared too.  Hopefully this will fix some of your troubles and you can start to focus on other, better things when everything is settled.... I'm sending nasty shrinking vibes to that lesion!!
Take care,
Diagnosed with MS April 2006
Longstanding anxiety and depression
Currently on Betaseron

Regular Member

Date Joined Apr 2006
Total Posts : 366
   Posted 4/20/2007 1:57 PM (GMT -6)   

I know how hard this has all been for you and it seems to just be getting harder! I am very sorry about the colon removal! Taking out an organ that has no real function is one thing but taking out something that your body really needs! I have no words to express my thoughts!!

I hope you get some respite soon and can take a day off without worry and concern!

Take care friend,

Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06

When everything's coming your way, you're in the wrong lane.

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 4/20/2007 2:24 PM (GMT -6)   
I'm so sorry...but maybe this will eliminate or at least minimize so many of the gastro-intestinal problem you've been dealing with. It's never a good thing to undergo this sort of surgery. I hope the outcome is worth it.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 4/20/2007 3:36 PM (GMT -6)   

I"m so sorry! I know this is the last thing u ever wanted and i know u'r scared. I"m scared for u. Did the doc say if this may be a situation where it can be reconnected to u'r small intestine later as we talked about??? I'm here for u friend. Call on me. I'll be there by u'r side as much as u need me. I hope so much this takes care of the overall probs and is the last thing needed to get u back to u'r healthy, beautiful self. I will always keep u in my prayers friend with special prayers that the horrible little lesion just goes away! Take good care and call on me as much as u need. U know i'll be right here for u.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Regular Member

Date Joined Jun 2006
Total Posts : 329
   Posted 4/20/2007 4:31 PM (GMT -6)   
I'm really sorry to hear about this Michelle, but like everyone else is saying maybe this will finally allow you to start feeling better again. Granted a part of you will be gone, but it wasn't doing much for you anyways, right?

I'm sure you have already went through this in your mind, but is there any chance that a different MS med might possibly shrink this lesion or get rid of it completely?? Someone here was talking about using the Tysabi (I don't think I'm saying that correctly) and it actually getting rid of lesions. I know you told me that you are secondary progressive, I'm still learning, maybe at this stage lesions disappearing is not a possible solution. But then again, how long would one have to wait to see any improvement? I'm sorry if this sounds like a rant, but just your comment about that dern lesion that is causing all of this... UGH!
I not only use all the brains that I have, but all that I can borrow.
  Author: Woodrow Wilson (1856-1924), 28th U.S. President

Regular Member

Date Joined Mar 2007
Total Posts : 260
   Posted 4/20/2007 4:57 PM (GMT -6)   
I'm sooooooo sorry Michelle. My thoughts and prayers are with you. My goodness its been a heck of a week on this board.
Take care of you!

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 4/20/2007 6:07 PM (GMT -6)   
Hi Michelle,
    I hope that once this is all done and over you'll begin to feel better.  I can't imagine what you must be feeling but I really do believe you can get through this.  My thoughts and prayers are with you always. 
Co-moderator for Multiple Sclerosis
Allow Healing Well to continue to help others, clink link for details

Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 4/21/2007 11:42 AM (GMT -6)   



We haven’t officially “met,” but I just wanted to say that I am so sorry that you have to go through this, and I am sending you positive thoughts and wishing you all the best!



Veteran Member

Date Joined Dec 2005
Total Posts : 896
   Posted 4/22/2007 1:32 PM (GMT -6)   
Thank you all for your encouraging words. It helps so much to know I have you all to come to and lay all this stuff out. I will keep you updated.
Michelle ><>
Co-Moderator MS forum

Ever stop to think, and forget to start again???

Ann Ireland
Veteran Member

Date Joined Apr 2006
Total Posts : 511
   Posted 4/22/2007 2:23 PM (GMT -6)   
If colon has to go it has to go! My sister in law's brother had his colon removed when still very young and has an illeostomy and he is doing fab. He used to scuba dive and water ski etc. Getting a tad bit too old for that now, but that has nothing to do with the colon gone.
I had part of my small bowel removed due to crohns. If I didnt I could have died for I had a blockage. That was five years ago. Still here!
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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