Hi everyone -
I had my 6 mos follow up last week and have been bugging my neuro for the results. Well of course the nurse that likes me there is on vaca this week and I'm in solely the neuro's hands and was told 'when she gets a minute, she will call you'. Yeah well, I'm not waiting for her, I went to the hospital and picked up my MRI (on CD - cool) and report.
As always, I'm wishin' I didn't because it doesn't sound like peaches and cream... Here it is and I'm wondering if this means that I have 2 active lesions now, please let me know your thoughts..
1. On FLAIR and T2 weighted images several scattered high signal intensity foci are seen within cerebral hermispheric white matter and superior basal ganlionic regions. These regions of increased signal intensity are nonspecific.
2. The cerebellar tonsils may be minimally low-lying, possibly indicating mild cerebellar tonsillar ectopia. No hydrocephalus.
COMPARISON: Two of the high-signal intensity foci on FLAIR and T2 weighted images within cerebral hemispheric white matter in the superior basal ganlionic regions are more conspicuous than previously seen. When compared to the prior study, there has been minimal change.
OK - to me... it looks as though I now have 2 active lesions and they are slightly larger than 6 mos ago. The tonsil thing is extremely blowing my mind because I had my tonsils out when I was 10!
Am I reading this correctly or am I off my rocker? ;o) I'm counting the days till I see the MS specialist, only 20 more days....
Yet another example of where a little knowledge is a dangerous thing.
Cerebellar tonsils have NOTHING to do with the tonsils in your throat. They are an area of the BRAIN that happens to resemble tonsils, thus the name.
Here is a web site that talks about the most common disease associated with a problem with cerebellar tonsils:
NOTE: YOU DON'T HAVE CHIARI. Note the words, "...minimally", and "mild". A radiologist presenting a report on MRI's has to report everything that might fall a bit outside the range of "normal", so this is noted. It likely means nothing.
As for the "foci" -- note the words, "nonspecific" -- meaning not indicative specifically of any disease mechanism (like MS); and "when compared to the prior study...MINIMAL CHANGE" (my emphasis). Nothing much different than your last MRI, in other words.
This is WHY nobody should try to interpret their medical reports without having some medical training, and without sitting down with the doctor to ASK these questions.
I'd read this and think that there is minimal change from last time, no real areas of concern, and let's watch and wait.
But that's just me.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....