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Regular Member

Date Joined Mar 2007
Total Posts : 25
   Posted 4/21/2007 5:22 AM (GMT -6)   
Hi everyone, I was wondering if anyone else has experienced burning in the lower parts of their legs.  I have been getting it from below my knees all the way down to my ankles.  They get almost hot to the touch and it seems to get worse when I lay down to sleep?  This is new for me, so thanks for any input and hope everyone is hangin in there!
(mod note: edited to remove caps)

Post Edited By Moderator (Kimber) : 4/21/2007 11:39:53 AM (GMT-6)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3553
   Posted 4/21/2007 7:35 AM (GMT -6)   

Hey Irish,

Wow, that sounds awful.  I don't have a lot of experience with pain.  You need to tell your doctor and all that.  Hot to the touch....that is weird.  Hang in there and feel better soon.  Let us know how you are doing.  Take care.  Sorry I couldn't be more helpful.

Love and prayers,


diagnosed: MS  July 2006
Treatment: copaxone, prayer, laughter, and positive thinking

Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 4/21/2007 10:04 AM (GMT -6)   

Hi Irish,


There are meds that can help with burning pain. I get something similar to this, except it is concentrated in my feet. It basically feels like I’m standing in a sizzling hot frying pan, and yes, my feet feel like they are radiating heat out too (don’t know that is actually happening, it is just how it feels). For me, this sensation started with a heat wave we had last summer, and while that may be a coincidence, heat is definitely a trigger for it now.  At its worst, each day the burning did intensify as the day wore on, and by the evening the breeze from the ac and the touch of my bed sheets became excruciating.


My neuro put me on Neurontin, but there are several other meds that are also used for burning pain. While I personally can’t tolerate the Neurontin, I am really sensitive to meds, and my neuro said that it is usually quite well-tolerated. These days, I only get this sensation when my feet become hot (and I get cold burning pain/weirdness when they get cold…can’t win, lol). Anyway, while the location of your burning is different than mine and I’m not sure it is the same thing, if this continues, you might try asking your neuro and see if you can find a med for this.



Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 4/21/2007 12:09 PM (GMT -6)   
Hi Irish,
    Unfortunately the burning is one of the sensory/pain issues some people can get.  Sorry it's so painful!!  My husband has it too from the waist down, and above the waist but not as bad. It does feel hot to the touch and anything touching the skin, sheets, blankets, clothes makes it worse as well as heat.   As Sunny says there are meds that might help with this, neurontin, lyrica and elavil are a few I can recall he has tried.  I hope you get some relief soon.
Co-moderator for Multiple Sclerosis
Allow Healing Well to continue to help others, clink link for details

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 4/21/2007 6:52 PM (GMT -6)   
Hey Irish

Hummm...i have some minor burning at times, tho only in spots and not long lived. Lately my more interesting issue is itching! Here's the funny part tho...only when i walk! It's on my right leg, thigh only. Weird, huh? Just as Kimber said, one of those strange sensory things. I"m sorry, don't know of any help or fix. For me, i just wait it out, but mine doesn't sound so bad as u'rs! Best wishes and please let us know how u'r doing.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Regular Member

Date Joined Apr 2006
Total Posts : 366
   Posted 4/21/2007 9:40 PM (GMT -6)   

I always say it is like fire running under my skin. It is painful and annoying because I know it is not there but my brain thinks it is!

Sorry I am no help just wanted you to know that I feel it too.

Take care and I hope it goes away!


Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06

When everything's coming your way, you're in the wrong lane.

Regular Member

Date Joined Feb 2007
Total Posts : 161
   Posted 4/22/2007 2:20 AM (GMT -6)   
Hi irish,

no help here unfortunately. But it certainly sounds rough...hope you get it sorted soon.

Not diagnosed
Neuro says he'd "bet on me having MS"

Regular Member

Date Joined Aug 2004
Total Posts : 274
   Posted 4/23/2007 9:38 AM (GMT -6)   
FIRE is a great description of this feeling. also approaches a vegetable peeler working on my skin. have lidoderm patches, but still comes on. right now centered at knee level of left thigh. had been at inner edge of both thighs. sigh. gotta love ms! linda

Regular Member

Date Joined Nov 2006
Total Posts : 87
   Posted 4/23/2007 4:48 PM (GMT -6)   
Just read your post. This is how I've felt today, since first getting out of bed. Usually it subsides during the night and I start "fresh." My biggest complaint with the MS is this burning pain from knees down. Worst is my feet. I feel like I'm standing in fire. When it is "better" it feels like standing in sand. I take lyrica. Started on gabapentine but didn't tolerate it well.


Rebif 44 mcg x 3; lyrica, ambien

Regular Member

Date Joined Mar 2007
Total Posts : 25
   Posted 4/23/2007 5:11 PM (GMT -6)   

New Member

Date Joined Apr 2007
Total Posts : 2
   Posted 4/24/2007 9:49 AM (GMT -6)   
Hi irishheat13:

I had my last “crisis” on the Holly Week. My write leg was like I had it on burning water.
I went to the Hospital for a 3 days treatment of “Metilpredinisolona” and slowly it is now better. I still have it on my write foot and sometimes it’s very cold at the touch but it is very hot the feeling I have inside. This MS is a very strange thing. When we think we have learned something about it … there’s something new appearing and we are back to “kinder garden”… Like this, I will go to the ME University … when I am going to be retired…
We are two people at the some place of wok with ME and we use to talk a lot about it. Fortunately we are very courageous and sometimes we make others laugh about some difficulties we have to do things.
We don’t give up. I have it since May last year but he has it for 9 years. Each day at a time and we are grateful for each one of them.
Good morning:
We have a beatiful spring day today. The sun is shining and the birds are singing.
Its true because I live at the countryside and we have a very peaciful way of leaving. For me with my ME its very important because stress is something we have less than on big cities.
And its easier when we have such a beatiful day as today.
If I could I wish to send a bit of this day for all of you.

Regular Member

Date Joined Jan 2007
Total Posts : 135
   Posted 4/24/2007 7:30 PM (GMT -6)   
Sorry to hear that you're not feeling well = I just got over an episode of leg/ankle pain and burning. It lasted for about 3 days. Mine comes and goes but this time it was severe. Still not DX'd, but getting closer. I do have RLS, but this type of pain is very different from what I feel with RLS and is constant.
migraines since 1974 ; septic hip - 1999 with birth of daughter ; hip replacement 9/03 / MS limbo since 3/2004; dx acid reflux - 11/2006; dx compressed discs>dx RLS - 9/2006; dx IBS 5/05.
Klonopin, hydrocodone, butalbital, prevacid and anything else that helps.

New Member

Date Joined Apr 2007
Total Posts : 10
   Posted 4/25/2007 7:12 PM (GMT -6)   
I too am experiencing the "burning" in my legs. Mine feels like a really bad sunburn and it hurts to touch it !! It only gets really bad at night and is also accompanied by spasms etc. I am waiting to go to the Doctor because she prescribed me Diclofenac last time and it really helped.
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