Jenny R. said...
Well I went for my follow-up appt today at the neuro. She is sending me for another brain MRI, since it has been a year since the last. I also have to get some more bloodwork done, ESR, Hemoglobin, T3, T4, TSH, Lyme titers again, and metabolic profile. I felt so rushed. She wanted to send me for a spinal tap, I asked about the EVP, she said that usually they don't pick nothing up unless there is numbness, not for the bug crawling feeling that I have had for 6 years now. Oh yeah, gave me nortrptyline (spelling?), can't read her writing, sorry. I thought that the EVP should be done when MS is suspected. I asked her what she felt was wrong with me, she said, post viral. Maybe small fiber neuropathy, might not ever know the cause.
I feel like she is putting me aside, do you think I should find a new neuro?
She doesn't know what this may lead to someday, she never even mentioned another brain MRI, I brought this up to her, and she said ok. But doesn't believe in EVP, SSEP, but wanted to rush a lumbar puncture. Does this make sense?
Sorry for the whining, I'm frustrated.
Thanks, and have a nice day
She want's to do a spinal tap because your MRI's are coming back normal. Have you ever had a spinal tap done? It could indeed show if there is an infection -- viral or bacterial or otherwise -- lurking somewhere in your body. This WON'T show up on an MRI. It MAY show up in bloodwork, but more likely will show up in a spinal tap.
EVP's indeed won't pick up sensory stuff, like the "bug crawling" feeling. They're designed to pick up nerve transmissions that are affecting muscles -- and the "bug crawling" feeling isn't that.
With all the other stuff coming back "normal", seems to me that a spinal tap is indeed the next step toward trying to figure out what's wrong with you.
And indeed -- you may never know. Viral (and some bacterial and other) infections can cause damage to your nervous system and not be traceable, once they're gone.
I think your doctor is telling it straight, doing the proper tests, and trying her best to figure out what's wrong. You need to be willing to undergo what tests she's wanting, to help her do her job.