My 13 year old daughter may have MS. Will the exacerbations be frequent?

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mystic342005
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/29/2007 12:43 PM (GMT -7)   
My 13 year old daughter may have MS.  She has exhibited all the symtoms; the numbness, the tingling, loss of coordination, difficulty walking, migraines.
 
She just went to the hospital and they did all the tests:  CT scan, MRI (showed no lesions), and a spinal tap.
 
We are still waiting for the results to come back as to whether or not it is MS, but it sounds like it, and her grandmother on her father's side has full-blown disabling MS.
 
One of my concerns at this point (and I know it may be premature, as we haven't had the definite diagnosis yet), is how long the exacerbations (flare-ups) would most likely last, and how it will affect her day-to-day activities and abilities -- specifically going to school, and any special needs she would need to have addressed.
 
Any insights into this aspect of the disease would be greatly appreciated..
 

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 4/29/2007 1:52 PM (GMT -7)   
Hi Mystic,
 
    Bless your heart, from a parent's perspective it is so hard to watch your child going through a rough time.  Please do come back and let us know what you find out.
 
    My youngest daughter's migraines started around age 13.  She experiences a lot of MS like symptoms as well including numbness, tingling, dizziness, trouble walking.   Do you find her symptoms seem to appear with the migraines?  I guess I'm hoping that your daughter might be like mine and all this might actually be caused from the migraines. 
 
    Check out the National MS Society's webpage at http://www.nmss.org   There is a section there that talks about pediatric MS and might be able to answer some of your questions.   It's hard to say how MS will effect your daughter if she has it.  The course of the illness varies greatly with the individual, but with early diagnosis and treatment the prognosis is much better than for people who were diagnosed many years ago before the treatments became available.
 
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mystic342005
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/29/2007 4:19 PM (GMT -7)   
Thank you so much for your quick response.  I know I may be overreacting, but I've seen firsthand how much MS has affected my Mother-in-law. 
 
I feel absolutely horrible for not having my daughter go straight to the doctor any time she's had "mysterious" symptoms over the past year.  It just never dawned on me to consider that she could be suffering from MS.
 
It's very comforting to know that there are other people out there who are struggling with similar issues in this situation...
 
Bless you...

booboobum
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 5/28/2007 7:03 PM (GMT -7)   
Mystic,

I suffer from migraines and have since I was about 10 (when i started my menstrual cycle). I can tell you that numbness in the limbs, especially hands and fingers and at times, parts of the face can be a part of this. Even after the pain subsides, from 1 to 3 days, one can still feel "not all there" and I notice that I can become a little clumsy as well. please keep us posted on the test results.
take care,
Pam
migraines since 1974 ; septic hip - 1999 with birth of daughter ; hip replacement 9/03 / MS limbo since 3/2004; dx acid reflux - 11/2006; dx compressed discs>dx RLS - 9/2006; dx IBS 5/05.
Klonopin, hydrocodone, butalbital, prevacid and anything else that helps.

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