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Regular Member

Date Joined Apr 2006
Total Posts : 366
   Posted 5/4/2007 2:12 PM (GMT -7)   
I had my follow up with the neuro today. The MRI was normal. All the in office tests that I failed last check were fine today, except for my eyes. My eyes are not tracking like they should. I have a lot of jerky movements. He didn't mention anything about them but my hubby noticed.

He told me that I get to "wait and watch". I have another follow up in 4 months.

Like everyone says, "If it IS ms, I will eventually have lesions". Justin is disappointed because he wants me on meds to help slow down progression. Justin also doesn't want to watch me go through another exacerbation as big as the last incident. I guess you could say that Justin is pretty convinced it is MS. While I am not totally convinced, I have no idea what else it could be. Maybe lyme, hahahaha. Those who know me will get it and for everyone else it's just a joke.

My friend, who has ms, keeps reminding me that it took her 6 years to get dx. I think I would go bonkers waiting that long! I am fortunate to have a determined husband, a supportive family and friends here on HW.

Thanks to all of you for keeping me sane, supporting me, listening and always understanding this game of "wait".

Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06

When everything's coming your way, you're in the wrong lane.

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 5/4/2007 2:26 PM (GMT -7)   
Lysha my sweet friend!

I'm sorry, i know u were hoping to learn more today! Answers are all to often fleeting with this, aren't they? I'm sorry the doc didn't even mention the things u know are going on. Seems the norm...the doc sees u for all of about 15 mins (max!) and can report no findings, but u'r family sees u all the time and are able to see every little thing. And we wonder why it takes so long to get a dx. Just hang tight and be a 'stud' and don't let this get to u. In time u WILL get some answers and u will be able to get off the island...until then we can continue to share a bunk if u like?
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 5/4/2007 3:08 PM (GMT -7)   
Seems strange to say "I'm sorry your tests came back "negative"..." but given your circumstances.....don't know what else to day. Just keep hanging in there, keep a log of any "strange things", and I hope you find some resolution soon.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Feb 2007
Total Posts : 161
   Posted 5/6/2007 9:30 PM (GMT -7) what Upptiy said! I hope you get answers soon!
Not diagnosed
Neuro says he'd "bet on me having MS"

New Member

Date Joined May 2007
Total Posts : 12
   Posted 5/7/2007 12:43 PM (GMT -7)   

I go see the third neuro in 5 years next week. I know I have MS. 2003, MRI showed lesions. Report said possible demylination. Neuro said "nope, I think it's mini-strokes" (shakes head) 2005 second MRI, shows additional lesions and report says demylation in progress. 2nd Neuro doesn't think it's MS.

Now, after having a year of hell and currently dragging my left leg around with a cane I will be seeing yet another Neuro. I plan on being pretty firm on this. I want the proper treatment for what is really wrong with me.


Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 5/7/2007 1:09 PM (GMT -7)   
Hi Lysha,
    I am sorry you have to continue to play the wait and see game.  All I can say is hang in there and I hope your answers come sooner than later. 
Co-moderator for Multiple Sclerosis
Allow Healing Well to continue to help others, clink link for details
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