My muscles ache quiet a bit. Anything extra I do makes it worse. When I brush my hair my arms burn, if I stand too long or walk any distance my legs will itch and this is along with the constant achy muscles. On the days that it's REALLY bad I take a lot of aleeve, ibuprofen, and anything else I might have. I have even taken 3-5 benadryl because it makes me so sleepy that I will sleep through it.
I don't recommend doing any of these things!! I am just being honest about what I have done. I don't have really bad days all that often any more. I just figure this is my normal now, I better deal with it.
It was so bad one day that I called my nurse to find out how much aleeve, ibuprofen and darvoset I could take. I was surprised at how much I really could take! It was a large amount but at least I was able to make it through the day. I normally HATE taking meds! I have only ever asked my neuro for provigil, everything else I try to deal with. I only take the provigil when I really really need it. I am on an IBS med right now, when I remember to take it.
I have noticed that some of my symptoms are worse around my period. My fatigue gets worse when I am in the heat and my personality goes grumpy. Other than that I haven't noticed any other corresponding times.
I wish you luck and I will interested in what others have to say.
Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.
Started my journey 1/06
When everything's coming your way, you're in the wrong lane.