kind of embarrassing - but - um - peeing in bed???

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New Member

Date Joined Mar 2007
Total Posts : 10
   Posted 5/9/2007 10:20 AM (GMT -6)   
Ok - so this is more than just a little embarrassing.  I first posted a couple of months ago, and I'm still waiting to see the Neuro - see them on Friday - so we're close, but it's just the beginning, I'm sure.  I still have a lot of the same symptoms, the dizziness, the numbness and tingling, the poor grip, the eye pain, the headaches (took myself off topamax, headaches worse again), occassional lip/face numbness (the right side of my inner mouth full of teeth marks where I keep biting my lips because I'm numb) and now, I've started a whole new embarrassing problem.
A couple of times now, I've awakened at night damp, having urinated in the bed.  When I get up to go to the bathroom, it just runs out of me.  I've *never* had this problem, and as a mom of three having potty trained all of my kids, this is kind of humiliating.  I throw a towel on the bed rather than waking my husband and three year old son who likes to sleep with me.
I know that bladder problems are associated with MS - but is this one of them?  I was tested for a UTI at the Dr.'s office a couple of weeks ago when I was sick, did not have one, plus no other UTI symptoms, so pretty sure that's not what it is.  Do I need to mention this to the Neuro or just kind of keep it to myself?
Advice please? :)

Regular Member

Date Joined Apr 2006
Total Posts : 366
   Posted 5/9/2007 11:39 AM (GMT -6)   
You absolutely need to mention this to the neuro!!! Also if you are having any bowel problems, anything different than your normal.

I know I'm not a ton of help, but you do need to tell him.


Things ruled out- TIA's, Lyme, Lupus, Crones, Narcolepsy, CFS, Fibro, Parkinson's, arthritis, and brain tumors.
Still nobody has answers.

Started my journey 1/06

When everything's coming your way, you're in the wrong lane.

New Member

Date Joined Apr 2007
Total Posts : 10
   Posted 5/9/2007 12:20 PM (GMT -6)   
  Hey StacieC, I can totally relate to your post !! I am having a relapse right now (started steroids on Friday and they are helping really well), but parts of my lower body are numb and I've had 2 accidents in last 2 weeks because of it. I can't feel when I'm holding it or pushing it and it's very embarrassing !! Thank god both times I was at home and not out visiting or in public because then I don't know what I would have done !! I am the same as you though...once I start going I can't stop it ! I know I have had this happen because it is numb down there....I don't think it sounds like you are numb there and if that's the case then you should definitely tell your doctor, if you are numb then at least you know that's why you can't control it. I feel for you though and if it's any consellation you are not alone in this. Take care !!

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 5/9/2007 4:02 PM (GMT -6)   

Of COURSE you should tell your doctor. Not "mention it". TELL him. Tell him that you are experiencing bladder incontinence, particularly at night (if that is the case), or however often it occurs during the day that you either pee yourself, or have to dash to the bathroom, barely making it.  And if you're experiencing bowel incontinence, or having to have bowel movements that you haven't planned for.

He (or she) is a DOCTOR. They've seen/heard/experienced everything in a patient, and you are no different.  This kind of information is essential for him to make some sort of diagnosis. It may be that he'll send you to a specialist for a test to see just what specifically is causing your bladder problems, but there are meds you can take for this that will make you MUCH more comfortable, and in control.

Same advice for you, Braygirl. If you're dealing with bladder incontinence there are meds that can help you control it, whether you have numbness "down there" or not.

And...girls and boys...we are ADULTS here, with very real medical problems. We need to learn the proper words to describe our problems, and not use euphemisms like "down there".


...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Feb 2007
Total Posts : 58
   Posted 5/9/2007 7:42 PM (GMT -6)   
I have not been diagnosed and also experienced loss of control of my bladder in March. It was terrifying as well as the experience of total numbness during intercourse.

My doctor put me on Solumederol (corticosteroid for inflammation) immediately. You could be having a serious problem/flare right now and the doctors would definitely want to know.

I'm sorry you're experiencing this.

Veteran Member

Date Joined Dec 2005
Total Posts : 896
   Posted 5/13/2007 9:15 AM (GMT -6)   
I had an Interstim inplanted 2 months ago and what a difference it has made with my bladder. Prior to going to this new uro I hadn't heard of it. It helps both retention and overactivity. I don't tolerate meds well so for me this was a lifesaver!

Good luck, I hope you find relief soon.
Michelle ><>
Co-Moderator MS forum

Ever stop to think, and forget to start again???

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