I hope you are all having a great weekend. I've been kind of just relaxing for the last day or two, have a 4 day (12 hours each) stretch of work, then I'm off for over 2 weeks - really looking forward to it. My MRI is Monday morning, then I go back to see the Dr. I think on Thursday.
As I've relaxed this weekend, I've really been trying to concentrate on what's going on with me. I talk to the Dr. and I have a hard time describing my symptoms - I get anxious and just can't seem to express myself correctly.
This weekend, I've had multiple cramps in my legs, and when I wake up, I'm so stiff and tight I feel like I can't walk. Then, this evening (and I've noticed before, but forget mention) my leg muscles on the right side just seem to keep tightening and relaxing - even making my toes curl - my husband could feel it - he was rubbing my feet :). I wonder - is that what is referred to as spasticity?
Also - eye pain - is this Optic Neuritis? I hurt in my left eye more than my right, but they are both achey a lot. I have had very brief bouts of blurriness in my left eye, but it doesn't last for any length of time - a few minutes at a time, then passing, but coming back frequently - just not constant.
As far as weakness goes - it comes and goes. I have a 4 year old that I can't for the life of me pick up, but my 12 year old daughter picks him up with no problem. I was trying to carry a 6-pack of 24 ounce colas into the house, and felt like I couldn't lift them. Since I'm left handed, it's always the left arm I notice this in - but I very rarely even attempt to go with my right.
And finally - headaches. I have them constantly - every day, and have come to accept that I'm going to be a lifelong sufferer of tension headaches. I also get migranes, frequently. But lately (I posted about this before, sorry if it's a repeat, don't remember exactly) I am getting a headache centered kind of to the left side (or at times just the right side) of my head, kind of at an angle, from my forehead to my ear, and down into my eye. This is unlike any headaches I've ever had in my life. Usually my eye pain (that I mentioned above) is present when this happens. The last time I had a headache like this, it stayed for 3 weeks and 5 days, day and night - I would wake up feeling it, I would go to sleep feeling it, it kept me from sleeping - it was constant, and it was awful. At that time, they CT'd my head and found it to be negative. Now, it's back, only not quiet as intensive - it's been about 3 days so far - but there are times that it actually feels like it lets go. Then, it comes back again. I tried to describe this to my Dr. and she kept wanting to insist it was tension headaches and referring to them as band like - but they aren't it's not all the way around my head, just at an angle on either side. Does anyone feel these - is there a better way to describe them?
I'm sorry - I don't mean to sound whiney - I think I'm just frustrated. I've been chasing answers for awhile now, and it's really just come down to it almost has to be neuro in nature. I'm afraid the MRI will show something, and then, in some ways, I'm afraid it won't - because I"m so tired of feeling bad and not knowing what's wrong. I really feel like my regular Dr. isn't listening, and I'm not sure yet if I trust the Neurologist. I feel awful tonight - and have for about a week - I don't know if this is considered a relapse or what because I don't know what's wrong with me yet. With the symptoms coming and going like they do, could it be MS or are we on the wrong path entirely? We've ruled out some things, and other things that have been suggested really just don't seem to fit the symptoms. I think I'm out of patience, and energy, and I'm ready to move on.