Welcome Zanmonkey!!

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rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 5/25/2007 5:29 PM (GMT -7)   
Zanmonkey said...
Hello,
 
 
I have been reading all of your messages and feel at home already. I was diagnosed with "possible ms" in 2000 and was well for 7 years. about 6 weeks ago my symptoms came back although some different. I never had eye pain or twitching of the arm before. I had an MRI 2 weeks ago that came back normal "that was a fun 4 hours!" And last week they tried and failed to do a lumbar punch. I am supposed to go back thursday to try again while under radiograph. They want to do this so they can decide which meds to go on. Is this normal? Should I go on meds if they are not 100% sure what it is?

Hey Zanmonkey!!
 
Welcome to the board! I started this new thread for u so everyone could see that u'r here! I hope u'll find this is a great site and will find support and answers to any questions u may have.  I'm so sorry to hear of u'r symptoms and their return, but hopefully u'll be getting some answers soon. Best of wishes on the second lumbar puncture. In answer to u'r question...YES...if u'r dx'd and can...please do consider going on the meds. What led to the possible ms dx tho? U said u'r mri came back normal? Was it a clinical presentation of symptoms that led to it? I'd love to hear more about it. I'm undx'd and it appears far from any answers and would love to know how u'r doc came to the place he has u at now.
 
One other thing...we have live chats on Mondays at 6:00pm each week. It's a great chance to get to know everyone as well as get some real time answers to u'r questions. I hope we'll get to see u there! Again, welcome to the board!

rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


zanmonkey
New Member


Date Joined May 2007
Total Posts : 9
   Posted 5/25/2007 6:13 PM (GMT -7)   

Hi there,

Thank you for the welcome. Well my first mri in 2000 showed some swelling in the spine but I was getting better so I declined the spinal tap. I have been told now by two Internal Med docs and one Nuro, that my symptoms and nuro exam are ms. They said weather my puncture comes back positive or negative I should consider meds. It feels so good to talk to people who understand. My family is great but they can't fully understand like someone who is going through it.

Thank you,

D


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 5/25/2007 7:59 PM (GMT -7)   
Hi Zanmonkey,
 
    Doctors are different in how they approach the meds.  Some like to wait for the definite dx before starting the meds, while others will start them at the possible or probable stages.  The rule of thumb these days is to start treatment as soon as possible to slow progression at the earliest stages which it sounds like your doctor is wanting to do for you.  Good luck with your second lumbar puncture, let us know what you find out.
 
    This website explains the criteria for a definite dx http://www.medscape.com/viewarticle/516519
 
 
Co-moderator for Multiple Sclerosis
 
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