So glad to have found you. I have been playing the waiting game....do not yet have a definite, firm diagnosis, but have been told that I 'probably' have ms. Had a major 'episode' 3 years ago...that left me unable to walk , lift my arms, walk etc..for weeks. MRI showed one lesion...evoked potential tests were suggestive but inconclusive. So now we wait for me to have another major episode. I already suffer from Crohn's disease which is related to the autoimmune response to the GI tract.
At present, I can't walk more that a short way before my legs buckle..or spasm. I suffer from vertigo often and have fallen as a result of this. Fatigue hits me like a ton of bricks at times....I will be perfectly well,and quite suddenly have a hard time holding my head up or keeping myself sitting up straight. I use a scooter to get around town...and one or two crutches at home.
This waiting game is frustrating . I've been asked to join a local MS support group but feel that I can't really attend without a firm diagnosis.
How long did some of you have to wait for a firm diagnosis?
If you'll allow me I'd love to come 'visit' with you from time to time. ....even with just a "probable ms" ?
Post Edited By Moderator (Kimber) : 6/15/2007 3:20:43 PM (GMT-6)