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Ann Ireland
Veteran Member

Date Joined Apr 2006
Total Posts : 511
   Posted 6/21/2007 2:20 PM (GMT -6)   
Recently strange things happening.
I'm on a drug trial of PD drugs. I think they helping posture and walking in the morning but nought else.
Still got the chorea, dystonia and jigging and jerking.
BUT hands and feet gone AWOL with neuropathic pain. So painful. Last night held ice from 3am til 5am and then had to get up, couldnt stand pain.
Feet too are even worse at times, but they dont feel hot or on fire. Just feel it. I stick em out of the bedclothes. Weather here brutal and only fit for ducks so we are not exactly in a heat wave.
When I get very tired the hands and feet get worse and I go all numby in the legs and they 'tingle' badly. Then I know I am in trouble.
With sis the other day and feet were on fire. showing another sis photos and asked the first sis to wet a cloth in cold water and I rested my bare feet on it. That helped a tiny bit.
Also body temp awol, again the more tired I am the more I fire up and feel on verge of collapse. Always have to have a cold cloth. I am of menopausal age but I dont flush up when this hot, look deathly white and it can last for hours. even neuro says not menopause.
Now told to wait and see how things develop and no more tests are envisaged. Have not had a spine tap or MRI to look for MS.
any suggestions,
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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