How does the heat affect your symptoms?Is it all in my head?

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Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 7/12/2007 2:39 AM (GMT -6)   
confused  Hi everyone,
We have been getting some mean weather over here on Vancouver Island. We Islanders are not used to temperatures up in the 35 degrees celsius. We are used to rain , rain and more rain. Now we are not complainers....when spring comes rolling around at 17 and 18degrees celsius...we consider ourselves very lucky.Now my daughter loves this heat, bless her little heart!, but I am rendered absolutely useless. Parts of my body go on strike. I can't feel myself pee, can barely feel the one side of my leg...get vertigo and falls to go along with it.
Am I just imaginning it....I know a lot of people who have a terrible time handling the heat.
'How does the heat affect those of you who have a firm diagnosis. For me who is still in limboland, I'm not sure what to mention to doctor anymore. I've always been afraid to be labeled "Hypo,chondriac etc I don't usually speak up much when I see my doctor. I've been told that  I have to wait for another major episode before I can be firmly diagnosed(and more lesions on my brain)....What constitutes a major episode?
Anyway, I'm hot, and tired(so, so tired. the fatigue is so not normal, hits me like a half ton truck....had to rant. Sorry folks.
I'm blessed that you're here.
Love and prayers.
tired old Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 7/12/2007 6:25 AM (GMT -6)   
I'm assuming your doctor knows about your bladder problems, vertigo, fatigue? If not, he should. And yes, many (but not all) folks with MS are severely affected by the heat, particularly heat and humidity. I describe it as my "internal thermostat is broke", my body doesn't know how to cool itself properly (I don't sweat much), and so even being out in the heat for more than 20 minutes or so is too much.

There's a difference between being a hypochondriac and reporting new symptoms. When's the last time you saw or spoke to your doctor?
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Regular Member

Date Joined Oct 2006
Total Posts : 185
   Posted 7/14/2007 9:47 AM (GMT -6)   
i don't remember my grandmother having troubles with heat but she was always inside when it was really hot out, so she might have and just stayed inside instead of risking having a problem. dh's uncle definatly has problems with heat. it doesn't take long for him to start to have problems if he is outside when it is hot. last summer they had to get him in the shade and cooled off quickly when they were at a water park because he was starting to feel dizzy and out of it.
the other symptoms you mentioned need to be discussed with your doc if he doesn't know about them. if he does know about them, they need to be discussed again if nothing was done about them or if they were just dismissed. you aren't being a hypochondriac, you are being your own advocate. do you keep a log of your symptoms? some docs are more likely to take you serious when you have the symptoms and teh dates they happened written down on paper. it can also help see if there is a pattern to anything.

Regular Member

Date Joined Aug 2004
Total Posts : 274
   Posted 7/14/2007 10:23 AM (GMT -6)   
sorry to hear of your troubles, but in a way i am glad to see this topic. i too think it's all in my head. maybe i really don't want to go to the baseball game... not the fear that i'd fall down stairs. brain often empty of thoughts. yesterday was somewhat warm and i was semi-comatose and extremely depressed. mostly wanted to hide. last week during our heat wave i didn't go out at all, except once for meds. left thigh still has extremely tender pins & needle skin. all i can do, mary, is hope it's over for you soon. linda
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