anyone tried any antibodics

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Zoe Butterfly
Regular Member

Date Joined Jun 2007
Total Posts : 134
   Posted 7/24/2007 6:40 PM (GMT -6)   
i was wondering if anyone has tried treating ms with broad specturm antibiotic treaments or with B12 shots-- my great uncle has had ms since he was 30 (the age of my diagnosis now) and he has only used b12 shots and had great success-- i have also read great stuff about antibiotic treaments and success with that-- anyone know about this??
Zoe Butterfly3
MS-- Diagnosed August 2006

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Date Joined Mar 2006
Total Posts : 2146
   Posted 7/25/2007 9:25 AM (GMT -6)   
Hey Zoe!

I'm not dx'd, so can't comment on antibiotics for ms, but i'm sure if anyone here has tried this approach they'll be along soon to give their input. I am so happy for u'r uncle and hope if u try this, that u'll have the same success. Be sure to keep u'r docs in the loop on anything new or diff u try. Maybe the vitamins would be a good addition to u'r meds, but i'm unsure on the antibiotics. Since ms is a malfunction of the immune system, it makes sense that antibiotics wouldn't affect that disease. Of course i can be wrong...there's much i don't know about this..but there is no proven invading force by which antibiotics could be effective. Take care and let us know how u'r doing.

Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Post Edited (rhondab) : 7/25/2007 8:27:37 AM (GMT-6)

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Date Joined Jun 2005
Total Posts : 2135
   Posted 7/25/2007 10:35 AM (GMT -6)   
My friend is on antivirals -- not he can't help with your questions.

How old is your uncle? He may have had a B12 deficiency rather than MS...the symptoms can look very much the same. Has he ever been retested for MS?
...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Zoe Butterfly
Regular Member

Date Joined Jun 2007
Total Posts : 134
   Posted 7/25/2007 11:00 AM (GMT -6)   
ah that is what i meant too is antivirals-- i have seen studies on both-- i would love info does your frined have ms??  my great uncle is 95... he is still walking on his won too-- i don't know if he was ever retested for ms-- since there is no real test for ms--  i know he's had mri's with enhanced lesions--  i will find out more about that for ya-- i am wondering about any treatments other thank the interferons or copaxone that people have tried and found successsful

Zoe Butterfly3
MS-- Diagnosed August 2006

Zoe Butterfly
Regular Member

Date Joined Jun 2007
Total Posts : 134
   Posted 7/25/2007 11:31 AM (GMT -6)   
wow-- sorry about the 800 typos in my last post-- tough day at the office so far-- we are very busy and my hands are only so-so-- i am just trying to get info on as many ms treatments as i can -- specially the ones that don't have tons of side effects if any cause i am not approved for interferons and copaxone made me worse-- steroids were fine when they were just being used for a flare up but when docs started me on monthly treatments of them -- i got soooo sick -- just looking for my options--  i know there is still a possibility that i have advanced lyme but i don't think i do -- or i don't know so i am trying to prepare for what to do next cause i have not many options left unless i do the "out of the ordinary" kinda scared either way

Zoe Butterfly3
MS-- Diagnosed August 2006

Regular Member

Date Joined Nov 2006
Total Posts : 87
   Posted 7/25/2007 8:20 PM (GMT -6)   
If you go to the thisisms web site you will find people there talking about experiences with minocycline.
Rebif 44 mcg x 3; lyrica, ambien

Zoe Butterfly
Regular Member

Date Joined Jun 2007
Total Posts : 134
   Posted 7/25/2007 8:26 PM (GMT -6)   
thank you madlou i will check that out-- i am running low on options and wan to research as much as possible-

Zoe Butterfly3
MS-- Diagnosed August 2006

New Member

Date Joined Aug 2007
Total Posts : 10
   Posted 9/4/2007 10:37 PM (GMT -6)   
hi i just wanted you to know my dr just gave me the minocycline. i took one dose and was fine but that night i took another and got really wozzy and sick feeling. i was told to only take one at night for a couple of weeks and most likely the dizzy and sick feeling will go away. i havnt started it up again i wanted to wait until i go see the chiropractor tomorrow. it seems much much safer than most other things.

Regular Member

Date Joined Oct 2007
Total Posts : 61
   Posted 11/25/2007 9:01 AM (GMT -6)   

I was diagnosed with MS in April 2005 and Lyme one month later.  I took a variety of antibiotics for 1 1/2 years for the Lyme and no treatment for the MS.  Although always initially feeling sick with the antiobiotics (Herxheimer reactions), I always subsequently improved and felt much better to the point I asked to go off of them for a while.  It's been 8 months since I've had an antibiotic.  Feel like slowly, but surely am continuing to slide backwards while off the antibiotic.  Most recent MRI showed two new lesions, one being in my C-spine with resultant balance problems.  Am now scheduled for a C/L/T MRI of my spine, EMG and on my third neurologist to try and figure out what to do.  Am now considering IV antibiotics (Rocephin) and possibly Copaxone. 

Although there is so much controversy surrounding the use of antibiotis, feel there is SOMETHING to this, even if it is just MS I have.  I can't explain it, but even if MS is not caused by a bacterial infection, the antibiotics do HELP ME.  I don't care what my diagnosis is--I only care how I FEEL.  It's frustrating, though--even if antibiotics help, how can you be on them for the rest of your life and what about antibiotic resistance?  I keep praying that the science will catch up with the reality of these diseases.

Wish you luck with your trial of Minocycline.  If you do initially feel sick while taking these, try to hang in there and get past that initial response to see what the long term effect is.

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Date Joined Jan 2007
Total Posts : 3571
   Posted 11/25/2007 11:41 AM (GMT -6)   

Dear LymeFrustration,

Thanks so much for sharing.  You have given us a balanced perspective of your situation.  We frequently get very righteously lectured from people who have lyme and think we do too.  I am truly sorry you have a double diagnosis and that you are currently not feeling well.  We can offer you our support as you look for answers. 

I am diagnosed with MS ( and not lyme ) and I have been on copaxone for a little over a year.  It is a very simple drug for me to manage. I am better and have shown only minimal progression after a year.  Many people are on copaxone and find it easy and effective.  If you choose to go back on antibiotics, they will not react with copaxone.  Copaxone allows you to take almost any other drug you may need to take. 

Let us know how you are doing. 

Love and prayers,




Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.
Elmer Diktonius

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