Yesterday at a routine follow-up appointment, my neuro decided that he doesn’t think I have ms after all and took me off all of my meds, including Copaxone and symptom meds. This is the guy that originally put me on Copaxone, and strongly agreed with the findings at the Mayo Clinic, namely that a demylinating lesion in my left cerebellar region was causing my vertigo, gait probs, and weakness and incoordination on the left side of my body. By the time I saw this neuro the first time, he felt that this (CIS) had turned into ms, and after another “flare” (or something) which produced new abnormalities in my clinical exam, put me on Copaxone.
He didn’t examine me at all yesterday. He thought I might be a bit depressed and that is causing all these issues, although did admit that a lot of the symptoms and abnormal clinical exam responses I experience can’t be explained away by depression. I asked him if taking me off wellbutrin (originally prescribed for “energy) was a good idea if I am as depressed as he claims. He said that he’s not sure I am even depressed at all, so he is fine with it, and then sent me on my merry way. He does want me to go get some further testing, but I think at this point I’ve pretty much had it. This caught me totally off-guard and I am still reeling from it. I think it’s time for me to try and forget about this stuff as much as possible, so I don’t know how much I will be around. I feel really bad that I gave you all the impression that I had ms…I just thought that I did. I just want thank everyone! You have all been so supportive and caring, and I appreciate that so so much!
I wish you all the very best,