I've been lurking here reading posts most nights but figure its time again to ask a few questions. When did those of you who use canes decide to do so? How bad did you finally get before you decided you needed some assistance? Me, my right sided exhaustion is steadily worsening and I am finding I am tripping a few times a day. So far I haven't fallen. Often it is my left toe that catches on the ground. Would this be because my right side isn't stable/strong enough to let me propel my good leg up and forward? I thought (maybe illogically) that all my tripping should be happening on my bad side! Am I just a klutz or could this be this (as yet undiagnosed) disease? Lately my right arm is so tired I struggle to brush my teeth/hair and feed myself using this arm. I have to do it left handed. I don't want to use a cane (nobody except my husband even knows that my GP is querying MS) and I don't want to draw any attention to my plight at my workplace (my colleagues would be supportive but I work in a large high school and the kids would crack up!) Anyway, if I already have a weakened/exhausted arm how could I manage a cane on that side? I am also wondering if my changed gait could be causing left hip pain due to overcompensation. Does anyone know or have similar experiences? Just to whinge even further, my body had a break from buzzing for a couple of weeks, but its happening again with a vengance. Both my legs purr constantly. My right back/flank is still numb to touch but burning/tingling again. Is this what would constitute a flare? Still two months until my initial neuro consult. I just hope I'm not going to be permanently damaged by the time I see this guy.
You need to let your doctor know about your left toe -- that is a condition called "foot drop" and is a neurological problem. The muscles in your left ankle aren't working properly, your foot isn't picking up properly, and you are tripping.
You also need to let him know about the weakness in your right arm. It sounds as if your right side is your weakest side? All those are important clues for him to reach a diagnosis.
It does sound like you are in the middle of a flare. You might want to call your doctor and report that, and see if the neuro appointment can be moved up sooner. While a couple of months won't make a lot of difference in the diagnosis process, it would be useful to see the neuro while you are experiencing all these symptoms. But note that even if you do see the doctor immediately, there is no guarantee that this (or any future flare) won't leave you with some disability. While sometimes steroid treatments can help shorten a flare, they won't necessarily stop the disability from occurring.
You should be using a cane for sure. But you need to see a physical therapist for some lessions on how to properly use the cane. If your right side is your weakest side, you use the cane on your LEFT side. This is a quick lesson: You have the cane on your left side. When you step forward with your RIGHT foot, you swing the cane forward on your LEFT side, so that you form a sort of tripod -- right foot and cane forward, left foot back. Then step forward with your left foot. Then repeat.
But a physical therapist can be MUCH more helpful than that..like, how to manage stairs with a cane, and ramps and doors and all that. And it might be that you would do better with one or two forearm crutches.
A cane can give you much greater stability and balance. And yes, your back and hips can be hurting because your gait is awkward, and your body is trying to compensate for the right sided weakness. A cane can help with that, too.
Falling is never a good thing. You can certainly cause all sorts of damage to yourself by falling. I broke my leg in three places when I fell..which led to 9 months in a wheelchair, limited physical therapy after that..and ultimately led to my being in a wheelchair full time. You don't want to go there if you can avoid it.
Bottom line: call your doctor, report your new and worsening symptoms, see if he can't get you in front of a neuro sooner. Good luck!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....