been on ivig for a year now. up until now i was on copaxone or rebif in addition to the drip. never had any side effects from ivig. always take an advil and benedryl an hour before drip is to take place.
had the first treatment at doctor's office. since then, i get the solution sent to me via messenger a day or so before the drip date. nurse comes on scheduled day and i take solution out of refrig. a hour or so ahead of time. as i said, had to get a port because of collapsing veins. vein gets flushed out and i get connected. the nurse uses a pump which keeps the solution dripping at a steady rate and speeds up the time needed. it still takes three to four hours. i call it my boring time. have to stay put with drip connected. connection tubing is left in overnight and removed after the second day's drip.
know it's doing something, as feel more symptoms when it's getting close. doctor was nice enough to allow me to try going with the ivig. my regular aetna medicare doesn't cover any, as it's not exactly accepted treatment. however, do have paad which is a prescription plan put out by the state of nj and that does cover it.
ivig not as scary as i thought. have become quite good friends with the nurses that usually come. i'd be glad to answer any other questions about ivig. linda