Uppity, I know you are not a doc and can't diagnose but you do an excellent job of providing first hand knowledge so thought I would ask. I should have asked the doctor yesterday but everything kind of hits you at once and after you leave you think of this stuff. He did the vision test, walking and a few basic tests. He said neurologically everything looked fine. Symptom wise, I did have some of the same symptoms of MS and several other diseases and that is why he was doing the blood tests to rule out other options. I did not voice my opinion as to my thinking MS. He was also doing a MRI as I have not had one for a couple of years to look for more lesions as I did have the one area on the original MRI's showing mid brain of brainstem. I never had an MRI done of the spine so not sure if anything would have shown up there. IF nothing conclusive shows up on the MRI other than the one spot, do they normally have a wait and see approach? Or is the symptoms and abnormal MRI showing the one spot enough for them to start treatment to avoid possible further lesions.
Yeah, I always have a dozen questions I should
have asked, when I leave the doctor, too!
He said "neurologically everything looked fine"? Then he's looking for something that's not neurological, something systemic, that might be causing your symptoms. Those tests he did in the office, while seeming to be basic, can really tell him a lot about what might be going on with your nervous system.
The MRI's you have scheduled of both your brain and spine? They generally don't do an MRI of the spine unless there are problems like walking (if there is a lesion in the spine, anything below that lesion would be adversely affected) or sometimes bowel and bladder problems, if there isn't something else they can identify that is causing those issues. You've got some of those problems, to be sure, so perhaps lesions will show up on the spinal MRI. That's where my lesions first appeared.
Usually someone is told "we have to watch and wait" when all the tests come back negative -- that is, "nothing wrong, here!" -- yet the patient is still exhibiting some symptoms. If only the one spot shows up on the MRI and there are no other "positive" results" -- meaning, "hey, this is out of whack, here!" -- then yes, you have to watch and wait, keep track of current symptoms and anything new that might come along,
and maybe, eventually, over time, there'll be enough new stuff happening that the diagnosis can happen....or not. In the meantime, though, you should ask about symptom relief. Some of the meds that can help with bowels and bladder control, for example, aren't specific to MS, and might be helpful, as well as the muscle spasticity and some of the other stuff. So if the symptoms get to be real troublesome, talk to your doctor about treating those, while you're waiting for something more to appear.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....