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Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 9/10/2007 2:40 PM (GMT -7)   
I am now into the 3rd week of the burning skin.  I'm sorry, but neuro says no to MS, then why the heck am I burning.  I'm about ready to pull my hair out.  I itch, then get random razor burn feelings everywhere.  I'm seriously thinking about going to the ER, enough is enough.  Is this common with MS.  My goodness, I have had these strange sensations for 7 years now, but the burning is new to me.  What are they missing? 

uppitycats
Veteran Member


Date Joined Jun 2005
Total Posts : 2135
   Posted 9/10/2007 6:06 PM (GMT -7)   

I don't think going to the ER is going to help.  They'll maybe give you something topical to try to treat the burning, but if it is a neuralgia -- a nerve-related pain -- that isn't going to do much. And then they'll refer you to your neuro. It's not like..if you walk into the ER, you'll be instantly transported to some special clinic where they'll run all sorts of tests. What WILL likely happen is you'll wait a long time, be "seen" by an intern, "triaged" -- meaning, moved to the bottom of the line because you're not there for what ER's are designed to do...treat people who have real emergencies...

meaning, you're breathing, you're not bleeding, you're conscious, you're aware and awake, you're not having an anaphalatic episode, or an asthma attack, or at risk of dying any time soon....

and then you'll wait some more.  Then you'll be told to see your doctor in the morning, and handed a bill (or one will be sent to your insurance company) that will be huge, and you'll still have the pain.

Neuralgia -- nerve pain -- can happen with MS. But..and I think I've said this before, maybe to you -- it can happen with LOTS of different disorders.  A rheumatologist might be a good next step...did I suggest that to you before?


...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 9/10/2007 6:40 PM (GMT -7)   

Uppitycats,

I have seen a rheumatologist, did all the testing, nothing was found.  Seen an allergist, my PCP, neurologist, gynecologist, and an infectious disease doctor.  Still nothing.  I believe that someday I will have an answer, and it probably will turn out to be MS, I'm hoping not, but in the back of my mind I think it is.  Thanks for your patience and understanding. 

Jennifer

 


calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 9/10/2007 7:38 PM (GMT -7)   
Sorry to hear about your burning skin. I also have the same problem with my skin, it has been plaguing me for several weeks now but mostly on the right side of my stomach where I am also experiencing what seems to be the 'MS hug". I am however undiagnosed at this point ( and who knows if I ever will be) but this itching and burning AND squeezing is driving me insane.When I went for my initial visit to my PCP she prescribed Neurontin and it does help. Lately, I also have a hot feeling on the left side of my back, just above my waist.
 
One odd thing about my skin in this area is a slight rash which looks to me like a shingles-type of rash. I did some reading about shingles and I don't believe that is what I have but these little itchy dots on that side of my stomach seem to be something to do with my nerve endings in the same way as shingles.
 
I am so puzzled with my health in the last couple of years.

Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 9/11/2007 3:59 AM (GMT -7)   

calicorosie,

I am undiagnosed also.  I have had other weird sensory problems for 7 years now, the burning is new to me.  I have a script of Lyrica, I am thinking about trying this.  Take care.

Jennifer

 


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 9/11/2007 6:41 AM (GMT -7)   
Hey Jenny and Calicorose!!

Good to see u both!! I"m in limbo as u both are and deal with some of the same things. I'm sorry, no answers, just wanted to let u know i see u'r posts and am thinking of u both. I think Uppity's suggestion of nerve pain is a good place to look Jenny. If MS has completely been ruled out, then things that look like ms but aren't are where u'r answers will lie. In looking at nerve pain/peripheral neuropathy u will see that most of u'r symptoms can be explained there. Of course, this is not a bottom line suggestion...as u'll see in the link i'll provide...there is usually a cause, a trigger if u will. Some can be autoimmune, others include physical injury (trauma) to a nerve, tumors, toxins, nutritional deficiencies, alcoholism, and vascular and metabolic disorders. So there are MANY causes to nerve probs...as i've found out too. If u haven't already been dx'd with this, then maybe look good at it and see if it answers anything for u. Just a suggestion to maybe help u get to the bottom of this.

http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropathy.htm


rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*


mosq10
New Member


Date Joined Oct 2007
Total Posts : 3
   Posted 10/15/2007 6:26 PM (GMT -7)   
burning is not a good thing as i have been there and done that with no answers after 6 years --- but press on there has to be reason.

Sera Smiles
Veteran Member


Date Joined Nov 2006
Total Posts : 671
   Posted 10/20/2007 8:57 AM (GMT -7)   
yeah  I have what you describe on my ears. Most afternoons around 4pm one begins burning. really really hot. turns bright red and it feels as tho it is burning on the insde, not extrenal. very odd. once tha begins to slow, the other ear picks up. it usually takes about an hour for it to stop.

mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/20/2007 2:36 PM (GMT -7)   
Jenny, Try the lyrica. It is for nerve pain. Hopefully it will help. I know that neurontin does help me somewhat, but it took a week or so to take effect.
Barb/mystery reader
Diagnosed April 2007


Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 10/20/2007 9:21 PM (GMT -7)   
Thanks everyone for the replies.  This is a very annoying feeling.  Its been here almost everyday now for 2 months or so.  There is no redness, the skin is not hot to touch, it just feels like razor burn at random areas.  I have noticed that it happens when I bend my neck, and as soon as I straighten it back, it stops.  I have heard of Lhermittes sign, its characteristic of MS, but I wonder if the bulging disk in my neck would cause this.  I know one thing for sure, the bulging disk sure causes neck and shoulder spasms, and triggers a migraine.  My c-spine MRI says no cord impingement though, can they really tell by a MRI if the problem is coming from the disk bulge.  All the docs that I have beenn to say that disk bulges don't cause problems, well, my husband has three in his lower back and he is sure in pain when he does certain things at work.  Thanks!!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/21/2007 8:27 AM (GMT -7)   

Hey Jenny,

Although Lhermittes is a symptom of MS it is a symptom of many conditions.  If you do a search or google of Lhermittes you will find a lot of articles that will state that.  I am not a huge fan of wikepedia, but it did say that a herniated disc can cause the Lhermittes sign.  Good luck with your search for answers.  A seven year search has to be so frustrating.  Keep us posted as to how you are doing. 

 
Love and prayers,
Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 10/21/2007 9:48 AM (GMT -7)   
Hi Jenny,
 
    L'hermittes sign is definately a charactistic of MS, but it can also be caused from buldging discs if they are buldging enough to hit the nerve.  DH has buldging disc in his thorasic and lumbar region which does cause a lot of pain to him aside from the MS, even though they are not touching the spinal cord itself.  I am wondering though, if flexing the neck in your case might change the postition of the buldge in your neck and causing the problems?   The MRI is taken when the neck is straight, not bent forward and might be worth asking your doctor about
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

Jenny R.
Regular Member


Date Joined Sep 2006
Total Posts : 162
   Posted 10/21/2007 1:31 PM (GMT -7)   

Thank you Gretchen and Kimber,

I think that I am going to just have my PCP send me for another c-spine MRI, since its been oer a year now, and ask for contrast also.  It also stated that there was no curvature to my neck also.  The pain doc told me that this is caused alot of times from whiplash, which I have been rear ended 3 times, and also from muscle spasms.  I am scared because my gram had MS and I have these weird feelings, they do not remit, they are there everyday, some days more than others, depending on what I have done that day.  Scrubbing floors and working above my head really does me in.  So you think that this disk bulge would cause these sensations.  I have had these weird feelings for going on almost 8 years now, and my brain and spine MRI have been normal except for the disk issue.  Thank you all for your help, its greatly appreciated!!!

Jen confused

 

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