I am not "officially" diagnosed yet, but have gotten a "probable MS". Am waiting for another major flare, or more lesions to confirm the diagnosis. Meantime, I walk with a crutch, or two, depending on the day....have to use a scooter to go any kind of distance....etc etc...it is been 3 years for me. I have not gotten worse....just little things, like twitching in my toes, jerkiness in my legs, sudden weakness and numbness in my legs, severe vertigo leading to falls.....but none of this is new....it waxes and wanes....so I wait.
As far as treatment, my Dr. treats symptoms rather than the disease. I spoke to a woman , actually two ladies, who have had MS for many years and who are chooosing alternative medicine rather than the conventional MS treatment. They said they were too ridden with side effects and FOR THEM , the alternate was better.
I also suffer from crohns disease which keeps me busy a lot of the time LOL! But I use this forum to keep my spirits up. I too get fed up with not knowing what else is going with this tired old body...I have to make a conscious effort to not look at the negative and try to focus on my many blessings. That is not always easy....sometimes the waiting and the "illness" gets the best of you for a time. I have been on anti-depressants from time to time....until I can pick myself up and start seeing the sunshine and hear the birds sing again. We do whatever it takes to get through .
I will keep you in my prayers dear Bunny!Oh. by the way...prayer...if you're inclined to do so, helps a lot too....or meditation and yoga, preferably with a trained meditation guide.
Bon Courage!( Be of good courage)
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.