Hi all. I have been looking for a good MS support board and this one seems to be the one for me. You all seem so supportive and kind. That's what I'm needing right now.
Let me tell you about myself, and try not to make a book in doing so . I am 44, female, and have been told that I have been "pre-MS" for a number of years. I have leasions on my brain, but they are not the size of the werner finger that they use to confirm a diagnosis. I am a Certified Medical Assistant. I have three teenage girls, a 17 year old and twin 13 year old that are type 1 diabetics. I recently remaried to a wonderful, supportive, loving man.
My symptoms are quite extensive. I fall a lot. Last week I was home alone and fell going up the stairs (duh), hit my head on the hardwood floor and was out for about an hour. My girls came home and called an ambulance due to the very large bruse and cut on my forehead. I have bilateral numbness in both feet to my kn ees and both hands to the elbow. I don't have feeling on the skin, but I sure do have the nerve pain deeper down in the skin. My eyesight is blurry, even with new glasses. I see a lot of floaters. I have migraines and am having some bladder control problems. There are days that I know what I want to say, but simply cannot get the words from my brain to my mouth. This frustrates me. There are many days that I simply don't drive because of the numbness. I have a strange symptom though, I get like charlie horses in the muscles in my abdomen. Anyone else experience this? They HURT!!! I also have Degenerative Disc Disease. I take prescription pain killers and muscle relaxers. Without the meds, I don't know what I would do, although there are days when they don't even touch the pain.
I called to make an appointment with a new neurologist and the receptionist went to check to make sure my primary doc had sent my chart notes. She had, and this neuro had reviewed them and at the top put "new MS patient". I would rather know than not know, but it is still a scary feeling. I am thinking that I need to buy a cane and maybe that will help my balance. There are days that I will not even go downstairs to do laundry because I am so unsteady on my feet.
My girls and husband are wonderful about supporting me, and I feel truly blessed. We have only been married since April 6, 2007.
My questions for right now is:
Does this sound like symptoms any of you are having?
Do any of you take muscle relaxers and pain tablets?
Have any of you gotten a definite diagnosis of MS with lesions that are "not quite large enough"? Meaning, were you diagnosed on your symptoms rather that the results of an MRI?
Do any of you have relatives that have MS? I have 3 in my family.
Well, I've thrown out enough for now, but I sure would like to hear from anyone who would take the time to respond. It would mean the world to me to be able to talk to others that are going through the same things I am.
Oh, also, do you have any websites for "cool" canes, not just plain brown ones? If I need to use one, I want to make it fit my personality.
I am not going to give up this fight. I am doing my best to think positive thoughts, but it sure would help to talk to others who can relate to me.
Thank you so much for reading this and I am looking forward to getting some feedback and to form some cyber friends. Blessings to you all, may you have a good day today, and a better one tomorrow.