I posted a few weeks ago that I was in Limbo. Not much better now. Just saw neuro who said C-spine and T-spine MRI's do not show MS signs, but evoked potential tests she said "are a mess" Brain MRI showed lesions. I had a lumbar puncture on Wednesday and was sent home with information on Avonex and Betaseron. She want to start me on one of these regardless of the results from puncture test. She said I have "Unspecified ___________ Syndrom" Brain fog made me forget what she said.
I would like to know if anyone is taking either of these treatments, and what are your thoughts on them. I love reading this site and enjoy all in info. Looking forward to getting to know you.
Thanks for taking time to respond.
I think that if the brain MRI showed lesions, and your evoked potential tests "are a mess", and the neuro is offering information on Avonex and Betaseron, you're no longer in limbo. You have MS. She's waiting for the lumbar puncture to actually say the words, but I'd be way surprised if the diagnosis changed.
I am on Betaseron, have been on it for 14 years. I am convinced it has slowed the course of my disease. I have had only one exacerbation in those 14 years, about 2 years after starting the Betaseron, but none since. Note that I am not significantly improved (i was significantly disabled when starting the Beta, and still am), but I'm not significantly worse, either. I think the sooner you start on one of them the better your chances of diminished disability, even with MS.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....