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Paris Girl
Regular Member

Date Joined Feb 2006
Total Posts : 33
   Posted 9/21/2007 6:38 PM (GMT -6)   
Well I'm back..........the neuro told me he didn't think I had MS, so I haven't visited the board in a long time.He continued to do
blood tests and EMG..........Still no dx as to what is causing me so many problems.............I do have neuropothy (sp?), but he
doesn't know why.........
I recently began going to a new Dr., and she feels like I very well may have MS. I'm still having the same problems. Flare-ups
come and go.......the pain.........everything still seems to have a pattern to it.............so.......here I am again. (smile)
I have an appointment with a specialist in MS the first of November. So.........maybe he can tell me more. I'm just so sick and
tired of being sick and tired...........lol lol
I still have the same symptoms.........however the feeling of tightness around my mid torso is worse, and I have began having
twitches in my left hand in the muscle below my little finger and wrist..............just twitches...........is that another thing that
goes along with MS? I have the muscle spams in my legs and somtimes forarms........but this is the first time in the hand area.
Just needing some support and any advise.............thanks everyone.......
La Donna

Regular Member

Date Joined Dec 2003
Total Posts : 494
   Posted 9/22/2007 10:11 PM (GMT -6)   

i know how you feel exactly, i have been to 4 neuro's and none except the last had tried to help me. he says i dont have lesions but he cant rule it out becasue of all the symptoms that i have. its just so darn frustrating to be in this limbo. to have all these bad things going on in your body affecting your life and not havieng any control, treatment or answers. right now i try to go day by day and its hard as hell but im doin it. thats my only advice to you, other than "try not to think about it" -- curtosey of my family which doesnt work at all---  but you can do it, i know you can you just have to try. ill keep you in my thoughts as we are in similar boats right now.

take care



Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
Probable MS

Paris Girl
Regular Member

Date Joined Feb 2006
Total Posts : 33
   Posted 9/23/2007 7:05 AM (GMT -6)   
Good Morning.
Thanks for your reply.  Yes it is very difficult going thru all of this with no answers.  I am very prayerful that this specialist will give me
some answers finally.  If not, well I've been dealing with this for almost 13 years now, so I'll continue to deal and search.
I am the type of person who doesn't really think about all of it, unless I'm having a flare-up. Then the symptoms don't allow me to just
forget about it very easily. You know how that is. But, the good news is, I'm feeling a little better today, so maybe I'm on my way to
feeling good. Just praying it ends soon.
Thanks for your support. Wishing you a wonderful and blessed day Bunny.
Paris Girl

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 9/23/2007 10:28 AM (GMT -6)   

I really feel for you limbo landers.  Not having answers must be so frustrating.  And dealing with no answers for 13 years!!!!!  Wow!!  Hang in there and know that you are not alone.  It is so neat to see how people reach out to each other on this forum.  Good luck and keep posting to let us know how you are doing.  We are here to support you whatever you are going through.

Love and prayers,


diagnosed: MS  July 2006
A person without a sense of humor is like a wagon without springs.  It's jolted by every pebble on the road.
Henry Beecher

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 9/23/2007 11:51 AM (GMT -6)   
Hi Paris Girl,
    Whether it's MS or not please know that you are always welcome here.  Support can be a wonderous thing so please keep coming back and let us know how you are doing ok?  I do hope you get some answers with this new specialist and maybe some kind of symptom relief would be helpful while you wait.  Glad you are starting to feel a bit better now.
Co-moderator for Multiple Sclerosis
Allow Healing Well to continue to help others, clink link for details
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