hot water and effects on MS

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bunnypucker
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Date Joined Dec 2003
Total Posts : 494
   Posted 9/24/2007 1:51 PM (GMT -7)   
Even though i am in MS limbo right now and i dont have an official d'x i was wondering about something. i go to physical therapy and work in a heated pool. i heard that hot water can exacerbate symptoms. even after showers it seems like i feel worse. has anyone ever heard of this?
 
bunny


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 9/24/2007 3:06 PM (GMT -7)   
bunnypucker said...
Even though i am in MS limbo right now and i dont have an official d'x i was wondering about something. i go  to physical therapy and work in a heated pool. i heard that hot water can exacerbate symptoms. even after showers it seems like i feel worse. has anyone ever heard of this?
 
bunny

Yes.  Hot water, particularly hot and steamy water, or hot and humid weather, or hot...can affect people with MS.
 
Eons ago, even before my time! tongue   a doctor would put a person who he suspected had MS into a hot tub of water and let her soak for awhile, then ask her to get out.  If she couldn't stand, or was significantly weaker, he'd diagnose MS (and we thought MRI's were bad!!)  :)
 
So yes, the heated pool is a definite no-no. I'm surprised your physical therapist didn't recognize that! While many folks do therapy in a pool -- it's a good way to exercise when we can't support ourselves, as the water acts as a support -- usually we find a cool pool, cooler than normal, sometimes early in the day before the pool heats up (and before we're way tired) to do the exercising.
 
As for the symptoms..usually they'll worsen while you're overheated, but once you cool back down, and your core temperature cools back down, they'll dissipate, back to whatever is "normal" for you.  And you won't do any long-term damage, just a period of time after the exercise when you're feeling pretty weak and awful.
 
So if you notice that you're significantly weaker, or whatever symptoms you have that might indicate MS are worse, be sure to tell your doctor about that! And you might want to avoid hot pools!
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


Kimber
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Date Joined Jun 2005
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   Posted 9/24/2007 3:20 PM (GMT -7)   
Hi Bunny,
 
    Heat can definately make symptoms worse for some people and that does include hot baths or showers.  It is something that I would definately tell your doctor about if you haven't already as it could be a big clue towards your dx.  Many years ago they used to dx MS by putting the person in a tub full of hot water for 15 minutes to see what happens.  Since most people with MS are heat sensitive, a rise in the body temperature from outside heat or water temperature can result in some temporary symptoms until the body is cooled down again.  Usually the most common being fatigue and weakness.   Hope this helps :-)
 
Kimber
 
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bunnypucker
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Date Joined Dec 2003
Total Posts : 494
   Posted 9/24/2007 6:11 PM (GMT -7)   
thanks guys, i never told my neuro that i am in pool therapy, im not sure why it didnt occurr to me. i definitely notice after showers and such i am horribly fatigued and rubbery and my tremors do get worse. i dont see my neuro for 4 months however but maybe i should call? its kinda hard as i dont have the d'x so were working blind here even tho i have all the symptoms. ill tlak to my PT's and see what they say also. i belive the pool is heated to 90 degrees but i could be WAY off so dont quote me on that.
thanks again for the info
 
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 9/24/2007 6:52 PM (GMT -7)   
Yes, definitely call the doctor. Even if he doesn't get you in earlier, having the note in your records would be a good thing.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


crohn'snz
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Date Joined Mar 2006
Total Posts : 74
   Posted 10/11/2007 7:03 PM (GMT -7)   
This is an interesting symptom! Is there an explanation for this?? I must say that I've noticed recently I need the water in the shower much cooler than I used to because I just get exhausted. I don't have MS (I hope - I don't really know what the neurologist is testing me for) but someone I know does. Is this a common symptom of MS? I got out of a very very long hot shower (not hot water I was paying for, I was on holiday!!) a while ago and was so weak and dizzy i had to rest on the bathmat for 15 minutes. The neuro did ask me if I get worsening of symptoms after exercise, I answered no. But, if I was being honest, I don't think I've done any real exercise recently, so how would I know!! Is the exercise question a heat related thing too?

uppitycats
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Date Joined Jun 2005
Total Posts : 2135
   Posted 10/12/2007 3:57 AM (GMT -7)   
crohn'snz said...
This is an interesting symptom! Is there an explanation for this?? I must say that I've noticed recently I need the water in the shower much cooler than I used to because I just get exhausted. I don't have MS (I hope - I don't really know what the neurologist is testing me for) but someone I know does. Is this a common symptom of MS? I got out of a very very long hot shower (not hot water I was paying for, I was on holiday!!) a while ago and was so weak and dizzy i had to rest on the bathmat for 15 minutes. The neuro did ask me if I get worsening of symptoms after exercise, I answered no. But, if I was being honest, I don't think I've done any real exercise recently, so how would I know!! Is the exercise question a heat related thing too?
There's an explanation for this symptom right in this thread: many people with MS have what I call a "broken thermostat". Our body doesn't cool properly (for example, I rarely sweat) and so we overheat very quickly.  And any time we overheat (particularly when our core body temperature is elevated), whatever symptoms we experience with MS will be magnified.  The weakness and dizzyness are pretty common.  Yes, the exercise question is a heat-related thing too.
...I am not a doctor, nor health professional, and don't pretend to be one, here.....


rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 10/16/2007 12:59 PM (GMT -7)   
I would suggest washing in the bathroom sink as opposed to getting into tub.My mom always called them sponge baths but if done correctly u will be as clean and much more comfortable than getting near the tub.

calicorosie
Regular Member


Date Joined Aug 2007
Total Posts : 48
   Posted 10/24/2007 12:22 AM (GMT -7)   
Gosh this is an interesting thread for me. I was away overnight with my son at a hotel on the weekend and whilst he was swimming in the pool, I went in the hot tub. I could barely move the rest of the day. My symptoms were so much worse and even my friend and her daughter who we were with noticed my sudden drop in mobility. She asked me why I was walking so slowly :( Here I was thinking how the hot tub might make me feel a little better but how wrong I was. I must make sure to mention this at my neuro appt in December.
 
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