My Former DX of MS is Sarcoidosis ~ Dropping in for a visit

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RareSarc
New Member


Date Joined Sep 2007
Total Posts : 1
   Posted 9/24/2007 5:07 PM (GMT -7)   
Hi all, just thought I'd drop by and slip you all some helpful info., esp. those that still await dx and lumbar puncture is clean.
 
Sarcoidosis is my DX, finally!!!  Could not get dx until I got tumor biopsy; mine is one of the rare forms (throughout).  However, this disease is sorely underdiagnosed!
 
 
This is another MS "mimic" disease.  Perhaps it will help someone.
 
Blessings,
RareSarc (formerly k.a. Neurotransmissing, Cindy)
 
 
********
 
Here's another interesting article, as it pertains to all these other conditions I've heard so many MSr's dx'd with:  http://www.sarcinfo.com/phase1.pdf
 
It was concluded, via my lumbar puncture last Jan., that I do not have MS; hence, I stopped injecting and so forth and just recently got my diagnosis confirmed ... I've been sick and had all these new developments that cropped up since 1996.  I'm on Prednisone and neuro is the primary damage in my case ... along with so many other things, secondary as well.

Post Edited (RareSarc) : 9/24/2007 8:37:22 PM (GMT-6)


Paris Girl
Regular Member


Date Joined Feb 2006
Total Posts : 33
   Posted 9/28/2007 8:09 AM (GMT -7)   
Dear RareSarc,

I'm glad you have a dx and know what you are dealing with now. So many diseases have the same or similar symptoms it seems.

I pulled up the website and found the information very interesting. I've never heard of it before. Thanks for sharing the information.

Wishing you a sunny day.........


Paris Girl
in LimboLand
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