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Regular Member

Date Joined Apr 2007
Total Posts : 164
   Posted 10/7/2007 12:52 PM (GMT -6)   
Hi everyone,
I guess even though I have symptoms on a regular basis, I had been feeling pretty good until this week.  Because of the intense muscle spasms I had in my legs last night, at a loss of what to do after I got 2 20mg doses of baclofen, a warm bath, and went to bed at 6:30, today I wake up with vertigo again.  Uggggggh
I really hate the way this disease rears its ugly head. 
I guess I am lucky that my 15 yr old has her permit, she is going to drive me to the store for antivert, and then later drive me to pick up her sister at gymnastics practice.  Even though I still think 15 is too young to be driving, I glad for today that she has her permit.
Just needed to vent a little.  Hope everyone else is doing better than I am.

Veteran Member

Date Joined Jun 2005
Total Posts : 2135
   Posted 10/7/2007 3:12 PM (GMT -6)   

I'm sorry you're feeling punky today!  It's VERY hot and humid here right now, temperatures in the upper 80's. I went out for just a short drive to a nearby restaurant to pick up some food, and it about did me in.

I was driving at age 15 myself.  Back in the "old days" (I'm 60") a person could get a driver's license at 15 if he/she completed a driver's ed course and was the "sole driver in the family".  My father had died when I was very little so my older brother was "sole driver" (he was 15 when my father died) til he went off to college.  We relied on cabs and friends for a couple of years, then *I* turned 15 and became the "sole driver".  I had to be real responsible real early, as I was driving around my mother and my 8 year old brother.  Maybe that's why I've had only one accident in all these years of driving -- when a car starting up from a traffic light stopped suddenly in front of me, and I didn't react as fast...and only one "moving violation" -- a bit of a "lead foot" going through a small town.  Maybe your daughter will take it very seriously too, knowing she has to be the driver for her ailing mom!




...I am not a doctor, nor health professional, and don't pretend to be one, here.....

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 10/8/2007 10:31 AM (GMT -6)   
Wow Uppity!

Great driving record. I have not done so well...pretty much had wrecks in all the vehicles i've had...and plenty of speeding tickets. *shame on me* I think some maturity makes a huge difference with all things...including driving of course. Clearly i wasn't too mature. Kudos to u for showing that mental strength and stepping up to u'r family's needs.

Hey Debbie!

I wouldn't worry about needing u'r daughter to take u places. 15 is a young age, but as i just said, mental maturity makes a huge difference. My oldest is 13 now and i feel sure by the time she's 15 i'll feel *ok* about her driving me places. No, i don't think i'll want her driving alone, but, like u, with me it should be fine. Lean on her and let her help u now. That tends to aid in the maturity process as well. She'll see how much u'r trusting her to take care of u and u'r family in just those small errands and it'll lend it'self to further helps for u should u need it. In the meantime...get well friend. I"m so sorry the symptoms are hitting u again and so heavily, but hold tight and know we're all in u'r corner here. Keep an eye on it all and let the doc know of anything new or extreme for u'r history. Dont' take chances...if it seems different or too much to the doc. Take good care of u and be well friend.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*

Regular Member

Date Joined Apr 2007
Total Posts : 334
   Posted 10/8/2007 12:33 PM (GMT -6)   

Hi Debbie,


I hope you are feeling way better today! Vertigo is no fun at all, and unfortunately seems to be hard for docs to treat. Did the antivert give you some relief? If you are still having those horrible spasms (hopefully not!) you might check with your neuro to see if your meds can be adjusted. For example, valium is sometimes used to treat both muscle spasms and also vertigo. I have found ativan (same benzodiazepine family as valium) to be somewhat helpful for my muscle spasms, and there are a few people on this board who use klonopin for spasms/spasticity issues.  I haven’t a clue how this class of meds would interact with the other stuff you are taking…I just wanted to say that there are other things to try, so please do check in with your neuro if you need to.


 I also find stretching the spasming muscle(s) in the opposite direction from the tightening helps to loosen things up, which then helps with pain (does that make sense?). Brisk, light massage of the affected area also seems to help relax the muscles for me.


Here is some general info on controlling muscle spasms:


Hang in there


Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 10/16/2007 3:28 AM (GMT -6)   
Hi, I also have a terrible time with leg spasms keeping me up all night. I am now on Clonazepam which seemed to work at first, but I've had to increase the dose twice now so am thinking I'll soon have to change. ..besides it only seems to help for a couple of hours then my legs start again. Stretching in the opposite direction of the spasm helps also.My girls help me with that one, as I sometimes can't get up or manage it by myself. I have had spasms in my arms and legs at the same time, where I end up curled up in a fetal position....completely "locked". If the girls try and un-tie me it doesn't work until the "spasms' has run its course...which is about 20 minutes. I haven't had that happen in about one year...but for a while was getting those "pretzel-like full body experiences' quite often. \
As for the vertigo...I've had lots of fun with that one also. It comes in waves....meaning, when I start getting vertigo , it usually lasts anywhere from 3 weeks to 2 months. I never know when it will strike. I have taken to using crutches, two , to keep me from falling which I have done often when the vertigo strikes.
No meds have helped in that department. I take Gravol and tend to try and sleep it off , all the while holding on to the bed for dear life when it decides to go for a "ride".
Believe me , I know how you feel. I only have a "probable MS' dx so far. Still in limbo.
My two daughters are my god-sends. They have seen me suffer from crohns disease their entire lives, and now this new "thing".
They have grown up to be extremely kind and considerate and I think more empathetic because of not only my struggles but their own. The important thing is to tell them how well they are handling things, tell them they are strong and capapble of handling anything that comes their way, and tell them that families face these problems together and are all the more stronger and closer for it.
God bless....and good luck
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Regular Member

Date Joined Apr 2007
Total Posts : 164
   Posted 10/16/2007 9:34 AM (GMT -6)   
Hi everyone,
Thanks for all the advice.  You guys all rock.  I did have Erica, my 15 yr old drive me to CVS for the antivert.  I hung on to the shopping cart for dear life.  The pharmacist told me to try a loading dose of 2, then 1 as needed.  I was surprised it helped.  Didn't stop it instantly, but it made a marked difference, and cleared up in two days.  Hope if it happens again, I get the same results.
As for stretching the muscle spasms, I had done that a long time ago, and forgot.  I tried it, just laid on the bed and stretched my arms up and legs down.  It feels great while stretching.  I wish I could hook up some type of traction to pull on the arms and legs with weights.  I can't hold the stretch that long, but it feels so good, I want to keep doing it. 
I also saw my neuro for follow up yesterday.  She told me how to adjust the Baclofen for the spasms, in addition with gabapentin for nerve pain.  She is scheduling a followup MRI of the brain since I have been on Copaxone for a year now.  I'll keep you posted.
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