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Regular Member

Date Joined Aug 2007
Total Posts : 48
   Posted 10/24/2007 12:06 AM (GMT -7)   

Hi :)


It's been a few weeks since I posted here, I have been on an emotional rollercoaster. I just wrote a HUGE long post and my pc lost it before I could post


To cut a very long story short (you probably should be happy my computer lost my post :) ) I had an ultrasound, the results showed a mass either in my uterus or on my left ovary. Panic, panic, all I could think of was ovarian cancer. Into the hospital 2 days later for a CT scan, 10 days of waiting and it was a fibroid PHEW!! Not that a fibroid is something to celebrate but a lot better than the alternative I was imagining.


Today I had to go back for the original CT scan scheduled a number of weeks ago. This was on my lower spine but I am convinced whatever I have is something above my waist due to symptoms I have.


I still have numbness in both legs and feet and my legs are very stiff some days but the hugging around my waist has dissipated a lot which has been a relief. I have however developed a weird sensation when I bend my head forward, I get a squeezing at the waist and a kind of shocking sensation in my left-hand fingers. L'hermittes??


Gotta go, thanks for letting me share. Hope everyone is good

Take care

Forum Moderator

Date Joined Jan 2007
Total Posts : 3550
   Posted 10/24/2007 6:08 AM (GMT -7)   

Hey Calicorosie,

You have been on a crazy rollercoaster.  I am hoping it slows down for you real soon.  This is a lot to deal with.  It does sound like you have Lhermittes.  But remember that Lhermittes is a symptom of many conditions.  It can be from a herniated disc or other spinal problems.  Make sure you tell your doctor about it, what is feels like and when it started.  It is also a good idea to tell you doctor about your sensitivity to heat that mentioned in your other post.  Most people with MS have a sensitivity to heat however most return to normal functioning and sensation after they have had a chance to cool off.  For me, I just need about 30 minutes and I return to normal.  The fact that you felt it for the rest of the day is unusual.  Good luck

Love and prayers,


Diagnosed with MS July 2006
Co-moderator MS forum
I was strongest when I laughed at my weakness.
Elmer Diktonius

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 10/24/2007 7:52 AM (GMT -7)   
Hey Calicorose

All i can do is echo what Gretchen has already said. I agree completely. Do tell u'r doc about the possible Lhermittes and exactly how it feels to u. If u need, make a list or print our u'r post...but be sure to tell him/her about everything u'r experiencing. Please let us know how the ct scan goes and how u are friend. I'm so sorry u had such a scare, but thrilled that it turned out NOT to be cancer. Take good care and let us know how u are.
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*

Regular Member

Date Joined Aug 2007
Total Posts : 48
   Posted 10/24/2007 10:28 PM (GMT -7)   

Thanks so much for the replies :-) I have been writing everything down and will definitely bring it all with me when I go in.

Take care

Regular Member

Date Joined Aug 2007
Total Posts : 48
   Posted 10/31/2007 12:44 AM (GMT -7)   
Hi again
I heard back from the Doctor's office today. The CT scan on my lower spine was normal which was what I was expecting actually. Now I just have to wait on the appointment with the neuro in December. Still numb in my toes and legs and trying to ignore it. I am pretty tired though each day and some days I could sleep forever.
Thanks for all your advice here.
Bye for now :-)
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