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cieyaya
New Member


Date Joined Oct 2007
Total Posts : 6
   Posted 10/24/2007 7:50 AM (GMT -7)   
Hello to all. I have just found your website and feel a huge relief to be able to ask some questions. I am 37 yoa female. I was very healthly up till Jan 2005 when I gave birth to my 4th child. Upon discharge from the hospital I had a rubella booster because my titer was low. I almost did not take it because I was not going to have anymore children, however being a nurse I thought I should anyway. I came home on a wed nite and by Saturday morning I needed help getting up from the couch and could hardly make it down the stairs because my joints were so swollen and painful. My husband and I researched this and concluded that it was a reaction to the rubella vaccine. Well I am still having "episodes" of symptoms that make absolutely no sense.
In the last 6 months I have had 2 episodes of optic neuritis, the last 60 days I have had the "pins & needles" in my lower legs, and the last week I have started having trigeminal neuralgia on the right side of my face. I also have bouts of unbelievable weakness and over all fatigue, especially in the afternoon. And ever since the vaccine, I have had trouble with my joints on most days. And just for kicks I have to ask a question in the last year EVERY time I start to eat something no matter what position I am in I have to take a deep breath by yawning?

After the first episode of optic neuritis, I had a MRI w/o contrast which I have read through other med websites that it really sould have had contrast. The only thing it showed was a lower sinus that was full, so everything was blamed on it.

I feel like I am going crazy and have absolutely nothing wrong with me except a over active imagination.
Thanks ever so much for letting me air my issues.... cieyaya

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/24/2007 8:51 AM (GMT -7)   
Hey Cieyaya

Welcome to the board! I'm so glad u've found us and hope u'll find the support and info u need here. It does sound like u'r experiencing some harsh symptoms. Have u seen a neurologist?? Who ordered the mri? As a nurse, i'm sure u'r aware that would be ur best next step. Once u've been to the doc who was overseeing u'r health at the time of the booster shot and haven't gotten any definitive answers, the next best thing may well be a neuro. Some of u'r symptoms do sound like ms, but again, as i'm sure u'r aware, they may be symptoms of many other illnesses as well. Yes, mri's WITH contrast can be more revealing, but as i understand unless an active lesions is present or there are black holes (i may be incorrect here!) then an mri without contrast is sufficient. How was it that they explained the fatigue and ON on u'r sinus?? That's an interesting little diddy there!!

This is a great group of poeple here and i'm so glad u'r a part of it now. As i mentioned earlier, i may not be correct in some of my input, but others will be along to correct me or confirm it. That's the great part of this setting...if one doesn't know, most times another will. That said, we have live chats on Monday's at 6:00pm (cst) each week. It's a great chance for u to get some real time answers to u'r questions from multiple points of view or experiences. It's also a great chance to get to know the other members. I hope we'll see u there!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*


Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 10/24/2007 10:15 AM (GMT -7)   
Hi Cieyaya,
 
    Feel free to vent anytime here, it really does help!   When the doctors can't figure out what's wrong right away, it's perfectly normal to feel that "its all in my head".  Please don't get discouraged, try to think positively and keep pressing forward for answers. 
 
    The rubella vaccine can cause a lot of the problems you are experiencing, particularly the joint pain and even the ON.   Swelling and pain in the joints are typically not associated with MS.  The other things you have mentioned can be tho, but also can have other causes as well. 
 
    From what you said, the first MRI was done about six months ago?  I hope I'm reading that right.  With the new stuff going on, its very important to go back and make the doctor aware.  You might consider keeping a journal and write down your symptoms, when they occur, how long they last to see if there is a pattern. 
 
    If you haven't seen a neurologist yet, it might be a good idea.  You didn't mention any other testing besides the MRI.  Have you had any bloodwork to rule out other possiblities yet?  Hope you feel better soon, please let us know.
 
Kimber
 
Co-moderator for Multiple Sclerosis
 
Allow Healing Well to continue to help others, clink link for details

cieyaya
New Member


Date Joined Oct 2007
Total Posts : 6
   Posted 10/24/2007 11:09 AM (GMT -7)   
Thanks Rhonda & Kimber,

I have had a full GI work up because of bowel issues and I have been to Rheumatologist. The GI he thought was IBS and a newone he called syncopal vomiting?( which is not right , it sounds like syncopal though) and the other said I had rheumatism? Which I think is a one size fits all DX. So I feel like I am back to square one. I have not been to a neurologist yet because my PCP continues to think that it is sinus?!?! I do have a order for some bloodwork which I hope to get drawn this week.

Again thank you for your insights

Cindy

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 10/24/2007 4:47 PM (GMT -7)   

Hey Cindy,

Welcome to HW.   I am glad you found us.  Who diagnosed your optic neuritis???  That alone definitely warranted a visit with a neurologist.  I hope you get some answers soon.  All of us here can support you while you look for those answers.  Good luck.

Love and prayers,

 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


cieyaya
New Member


Date Joined Oct 2007
Total Posts : 6
   Posted 10/25/2007 9:32 AM (GMT -7)   
I was Dx with ON by a board certified ophthalomologist. He was actually the first one to bring up MS. How funny is that. I had only been to 3 ddifferent doctors in the last 2 years with multiple complaints. However I still feel like it is all in my head and not a really health issue. But like I said I hope to get my latest round of blood work done this weekend. thanks for all your help

Cindy
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