Just got out of Hospital

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Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 10/25/2007 5:15 PM (GMT -7)   
Hi, I haven't posted on here for a while but have been reading daily.
 
This Monday I left work early with severe dizziness and weakness, and my hands were shaking. When I got home I slept for a few hours and got up to use the bathroom(I guess) and found the floor instead. Somehow I called my wife on my cell phone, she was in the living room, and told her to come help me. I don't remember any of this. She found me face down on the floor of our room passed out. I came to and didn't have feeling in or could not move my legs or arms and hands. After trying to get me up and failing at that, she called an ambulance and I went to the E.R. I had a really really bad head ache and vertigo, could not even open my eyes without spinning. I don't remember much but I got admitted and put on Steroids and had an MRI and cat scan. The MRI didn't show and new lesions. The doc finally said I had an acute MS exacerbation. I am home now but still really weak in my legs and feet.  Plus these steroid's are making me go crazy, at least I only had a 3 day treatment instead of 5 day I had last time. They gave me Ambien in the hospital but would not prescribe me any- I don't know why, they told me to take benadryl which was supposedly the same thing. . . . right. Just wondering something that the neuro on call told me and don't sound right to me, he said Headaches and MS are not related at all. I don't understand that cause I have heard that they are ? anyone know? Anyways I think I'm going to try and pass out for a while before I'm up climbing the walls in a few hours. Thanks for letting me share my S*%#y week. talk to you later.--
 
Tertle.

rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/26/2007 6:14 AM (GMT -7)   
Hey Tertle

Wow!! I'm so sorry!! U deserve such a break friend! I"m going to do some research to hopefully back up what i'm about to tell u, but as i understand headaches CAN be part in parcel of MS. When i was first being looked at for ms i was asked specifically if i'd had a history of headaches. I have. My mother in law was with me since i was pretty out of sorts that first visit and she chimed in quickly on that one too. AS SOON as he heard that (and after he'd heard much more on my symptoms and history) he mentioned MS. No, that's not confirmation, but since i've seen much dicussion on this topic and agree with u that i thought it was. I'll be back after researching and post what i find and hopefully some links. Please take good care of u'rself and rest today. I know this is so hard, but u can and will get thru this. Take care friend.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 10/26/2007 6:54 AM (GMT -7)   
Ok here are some links that lay it out for us...and by us i mean me too!! Interestingly enuf i only just started having migraines in my eye since all my other symptoms presented themselves. So, i'm learning here too. Thanks for bringing this up to us all!
 
 
The last link is really just to show that further research is needed and being done. There are, as i found, many like these if u google 'headaches multiple sclerosis'.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 10/26/2007 7:46 AM (GMT -7)   
Thanks rhondab, that info helped, It seemed a little weird that he said the two were not related. It just makes sense. I didn't sleep very good last night and still have my weakness in my legs, I can say I have full fealing back in my hands and arms which is good. I'm really scared now that this is going to happen again and I don't know what to watch for. The doc said that I won't know until it happens usually.- That sucks. I have missed this whole week of work now and its unpaid, I shouldn't really complain because of FMLA I won't get fired or let go. I wish I didn't have this stupid disease, it shouldn't be like this. I'm trying not to feel sorry for myself but its hard when you feel so helpless, ya know. Well I have alot of support and family to help, but I don't like falling back on others to much it makes me feel like I'm worthless. I should be the head of the household and here I am feeling like I'm not. Got to go talk to you later.---Tertle.

mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 10/26/2007 2:13 PM (GMT -7)   

Tertle, I'm sorry to hear that you re going through this.  I did not realize that a flare could hit you so quickly.  That must have scared both you and your wife.  Steriods can really make it difficult to sleep.  Do you have a primary care physician? Ask her or him for a prescription for ambien.  Benadryl obviously is not the same and does not work as well.  I hope you continue to improve.


Barb/mystery reader
Diagnosed April 2007


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 10/26/2007 2:19 PM (GMT -7)   
I didn't realize that it could hit that quick either, and it did scare us pretty good, from what I can remember I thought I was going to die. but I'm here. I don't have a primary doc yet but my neuro prescribed me some Ambien, actually its generic but I think it should work the same. The benadryl sucks, I took it at 9 last night and was up at 12 till 5 with no sleep. Thanks for the thoughts Barb.----Tertle.

Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 10/26/2007 3:05 PM (GMT -7)   
Hey Tertle,
Geez, i hope you feel better soon. That must have been so scarey. Just letting you know that my thoughts and prayers are with you for a speedy recovery from this flair. Please don't feel down on yourself even tho it is so easy to do with this ugly disease (i know the feeling). You will get back to your old self soon, have faith.
Take care,
Lynn
Dx Dec 06, Rebif,44mcgs 3 x wk, Baclofen, Lyrica, Celexa


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 10/26/2007 5:03 PM (GMT -7)   
This disease is ugly, and that's how I feel which isn't right. I'm ready to feel normal or close to again. I think this is a real eye opener for me and its time to really change my diet and excersice more. I just had a long talk with a friend of mine (who is actually my neighbor). He is older and much wiser than me. he suggested talking to a nutritionist about changing my diet. I have alot of support from my wife who makes good meals but she works 3 nights out of the week so I'm on my own. does anyone out there talk with nutrionists? I need to do something thanks again everyone for the support, I will try to post more often than I have,---Tertle.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 10/27/2007 8:38 AM (GMT -7)   

Hey Turtle,

I am so sorry for you troubles.  You have been through an awful lot lately.  All my flares have hit really hard like that too but not so hard as to liteally lay me out like that last one of yours.  Mine came on in a matter of hours and there was no doubt as to the fact that something was very very wrong.  I changed everthing with my diagnosis.  I eat very healthy now.  I don't do anything really different, I just do what we are all supposed to be doing.  I limit red meat and fats and eat lots of freash veggies and fruit and all that. I also excercise in various ways.  Mostly aerobic, I need to add strength training but I have been a bit lazy about that.  The excercise has really helped keep my energy level up.  Good luck with all you do to increase the quality of your life.  If you make those changes, just the fact that you are doing more to fight this disease will make you feel better and impowered.  Keep us posted.

Love and prayers,

 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 10/29/2007 1:15 PM (GMT -7)   
OK here are my 2 cents

I had horrible migraines and I was on meds. sometimes they worked other times they didn't, I was on copaxone at the time.
Had MRI and I light up like a Christmas tree. half of my brain light up..bummer so they..
Put me on Tysabri, NO headaches, at least no migraines.

I have an MRI on Friday to see if its working but ya, I totally think they are related.

Sorry that it was so bad I had no idea that could happen.
I think everyone has a hard time asking, wanting, excepting help from a spouse and family. Its a normal feeling and I still decline most offers and then regreating it later on.
DO NOT let this bring you down. Keep your chin up go and do something for yourself that will make you happy. At least once a year I go climbing out west and I relapse later on but
I look back, when I am down, and think that I did something great and I can endure anything. Its about finding empowerment. Makes excepting help easier and dealing with this tolerable.

Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 10/29/2007 1:30 PM (GMT -7)   
I agree, I think I need a vacation, like a cruise or something. I just had lunch with my boss today and he was telling me the HR dept doesn't think that I will be able to come back and stay healthy. I have FMLA but it seems like they are trying to go around that. I know one thing and thats that I need this job and insurance. My family is depending on me. He told me today that if I wake up in the morning and am really tired to just call and say I will be in a little later and try to make it. That way I am showing HR that I care and am trying. Its easier said than done. I stayed home today just because the streroids still are keeping me from sleeping. The Ambien knocks me out for about 3-4 hours and then I'm wide awake. Hey buckeye, whats your take on diet? People are telling me it's really important like cutting dairy products completely out and only certain kind of breads.

Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 10/29/2007 4:49 PM (GMT -7)   
wow your HR department sounds a lot like the crappy employer, they aren't MDs they have no idea of what you are capable of! When I was diagnosed they did everything in their power, some not so legal things (ironically I worked at a law firm) to get me to leave.
I knew they would make my life difficult so I got pregnant continued working (had 1 month off while I was pregnant- paid) until I had my son I took my maternity leave (which was paid) and left them high and dry and ask for my vacation pay. I had a good ADD case going but I quite because I wanted to be a say at home MOM. Try to go in don't give them an excuse. There are doctors, nurses and people who have MS in every possible profession. Don't let them tell you that.

My diet? I eat whatever I want.just so happens I eat fish no red meat i drink coffee all day long with sugar and i drink as much milk as i want 1.) it makes me happy. 2.) you can't cure or stop MS through food its not going to be that easy if so everyone would be doing it and our doctors would advise it 3.) I stay active and in shape. I think having a positive attitude and just live is the most important.
adherence to a therapy. De-stress your life
You can't do anything to make it worse or better. Don't get to wrapped up in finding a cure or researching why you got MS....just get through your relapse and pick yourself up

I ride in a bike tour in Ohio called the Pedal to the Point for the ms society. it was the most empowering thing yet that I have done. first being hiking alone with my husband in the grand canyon for a week I am not bragging ..just my point being Dont' let this run your life

Get active ...get out there....get living

Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 10/31/2007 7:35 AM (GMT -7)   
Buckeye,

Thanks for the motivation, your right I probably spend to much time worrying and wondering about this stupid thing insead of living life. If I can get over that I should be fine. The only thing that still bothers me is that when I feel like crap, I just sit and think about what I did or ate that could have made me feel this way. What kind of Winter things does the ms society put on? I seen a snowmobile ride but I don't have one. Ohio is really close to Wisconsin, were abouts in Ohio are U? We play you guys this weekend in college football, good luck to us huh? it should be a good game either way but we know who's going to win. Well I'm at work now, so I should probably do something. Thanks again and I will try to get my mind right.-- Tertle.

Buckeye
Regular Member


Date Joined Aug 2006
Total Posts : 68
   Posted 11/5/2007 7:20 AM (GMT -7)   
I have never looked into events at my chapter, maybe I should. Good idea.
I live in Cleveland
Ya, we beat you guys, but it was a great game.

I went to the Browns game and they won too! So good weekend for Ohioans

Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 11/5/2007 8:17 AM (GMT -7)   
Yea, I thought we had you guys for a minute there, You guys are to good all around. Packers got another win which is always good for us. I'm going to the Wisconsin-Michigan game this weekend, pretty excited about it, my work is taking 3 people and they are paying for everything! can't complain about that. Well have a good day--Tertle.
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